I'm scared all the time. When my neuro told me that he thought I'd be in a wheelchair within 7-10 years...I couldn't think of anything else for a few weeks. And then all of a sudden I thought "watch and see....not going to happen to me" I changed my attitude....but it still doesn't take away the worry. For that...I talk to people who know how it is. I just found this site recently, and I think it'll be a big help. I'm here for you if you need.

None of us knows what the future holds and we just take one day at a time. A concern that I have is that all of your worry creates a great deal of stress for you which could lead to flare-ups.
Do you have other medical conditions that you have to take so many medications? I take ten pills in the morning and 5 more by the end of the day. I don't mind though as I look at each of them as helping me lead as normal a life as possible. I take the once a week shot and don't think I'd like the daily shot, but I'd do it if I had to.

Fear? Yes, I was terrified when I thought I had MS (before actual diagnosis). Talking with a good friend and my priest alleviated my fear...I no longer fear this disease...I've just learned to live with it and the ups and downs that come with it. Then again, I'm not a single Mom with the pressures that you have. My MS also appears to be in remission (but I still have symptoms). I'm not really sure how I let go of all of the fear but I did. I just remember being horribly afraid and feeling that I was going to 'break'. I went to the parish office for my church and that is where I encountered my friend and the priest of my parish. I was shocked to learn that my friend revealed that she had MS (I would never have guessed!) and that Father W.'s mom has MS as well. These two people provided so much comfort to me that the fear just disappeared and really hasn't come back. I wish the same for you. I hope that you can find someone you can talk to. This board is great, but speaking to someone in person and getting a huge hug from him/her is even better!

Do take care...my prayers are with you and your son.

Michelle (Eloise)

the m.s. association has a great book they will send you for free.it's called mommy's story.it is great for my two 6 year olds and my 4 year old. there phone number is 1-800-532-7667.
i take copaxone shots.a thyroid pill and a hormone replacement pill(i had a hysterectamy at 35.)that's all i take daily.i allways have neurontin on hand for nerve pain but i only take it as needed.it's your choice as to what you take.m.s. is different for all of us.
please don't think that because you have m.s. that means your sentanced to a wheel chair.i wish i had the numbers to tell you but allot of m.s. people never spend a day in a wheelchair.stress is not good for m.s. i get scared to.this sight has great people on it.hang in there honey.

i was 29 years old with a 5 and 7 year old, when i went to my othro. surgeon and he showed me my report from my mri that said "probable ms" and was the same 29, 2 days after christmas when my neuro said "definite ms" and even with a supportive husband i haven't stopped being scared. like everyone says you take it one day at a time and know how the day will go if you are able to moves your legs out of the bed. if i start to think about all the things that could go wrong with this illness then i don't think that i would actually get out of the bed at all. i just do it and let all be damned. i might be in a wheelchair, i might not. who knows...

Scared of the unknown? Sure, everyone is. Coping skills can be learned. Life style changes may be made to let you continue taking care of your child & yourself.

Being in a wheelchair is not anything to be afraid of. Without the chair, I would be stuck in a nursing home. I have a power chair that can go 25 miles on a charge. I can go 8 MPH & I live in a town that has trails everywhere & can continue to shop & go out whenever I wish.

You have MS. It is not a death sentence.

Hi, it feels like a death sentence everyday. I was getting better and I was so happy that I was feeling good and then pow, it hit me again, I fell lousy all the time now. I might have one or two good days. Now if this is not a life sentence I sure feel like I'm on skid road. I feel like I am carrying 10 pound weights on my arms and legs. I just feel useless. As you can tell I am having a bad day, thank God my fingers still work. Then my wonderful sister says "oh just shake it off, let's go shopping" Oh my what is it with these people. Anyway I'm glad I got that off my chest. And sorry to your question, yes I am very scared I do not want to feel like this anymore.