Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I must say, this is a group I NEVER thought I would be joining. And yet, here I am.
A little about me:
My name is Kate. I was diagnosed April 4, 2007. 24 days ago. I had my 29th birthday April 13. 9 days after my diagnosis. I am dealing with the shock of being told I have this OK, I dont have the luxuary to be depressed or real mad or sad because (as you probably noticed in my screen name) I have 4 little girls who are depending on me to make everything alright. My girls are 6.5, 5,3 and 21 months old. I am married to a wonderful man, but that said, he is a man and at times he says and does the stupidest things. We will celebrate 8 years Dec 18.
My diagnosis was very quick. I work up on a Friday March 30 after a long night of what I thought was the worst case of restless leg syndrome ever. I noticed my upper thighs on both legs were burning like I had a sun burn, but they werent red. I figured I rubbed them on the sheets alot the previous night due to my restless legs. Saturday my left leg was fine, but then my right leg had a weird heavy numb feeling in it. I could still walk and drive do I let it go. By Sunday I couldnt walk real well on that right leg, it was numb from toe to thigh. Monday I fell once. Tuesday my husband was off from work so I went to my Dr., he thought I had a pinced nerve in my back. He told me to call a neurologist. I live next door to a good neurologist. I called him and I couldnt get in to see hom until the next day, so he came over my house that night after he got home. He tested the feeling in my leg and saw me attempt to walk and admitted me that night.
I had an MRI the next morning. 15 minutes after I was out of the MRI machine, my friend and neighbor was sitting on my hospital bed telling me I have MS. I have 15 lesions on my brain. 1 deep. I have 9-11 lesions in my upper neck, 2 into the spinal cord. And 7-9 on the lower spine. I have it pretty bad.
I am going Tuesday May 1 for optic nerve tests and an EMG.
I just started Copaxone last Thursday. Man does it STING!
I am just now walking without my walker, I do have a slight limp. I cant drive yet, soon I hope.
SO thats me, in a nut shell. Thanks for having me here.
Anyone else have the optiv nerve test or an EMG done? WHat do I expect?
Kate
A little about me:
My name is Kate. I was diagnosed April 4, 2007. 24 days ago. I had my 29th birthday April 13. 9 days after my diagnosis. I am dealing with the shock of being told I have this OK, I dont have the luxuary to be depressed or real mad or sad because (as you probably noticed in my screen name) I have 4 little girls who are depending on me to make everything alright. My girls are 6.5, 5,3 and 21 months old. I am married to a wonderful man, but that said, he is a man and at times he says and does the stupidest things. We will celebrate 8 years Dec 18.
My diagnosis was very quick. I work up on a Friday March 30 after a long night of what I thought was the worst case of restless leg syndrome ever. I noticed my upper thighs on both legs were burning like I had a sun burn, but they werent red. I figured I rubbed them on the sheets alot the previous night due to my restless legs. Saturday my left leg was fine, but then my right leg had a weird heavy numb feeling in it. I could still walk and drive do I let it go. By Sunday I couldnt walk real well on that right leg, it was numb from toe to thigh. Monday I fell once. Tuesday my husband was off from work so I went to my Dr., he thought I had a pinced nerve in my back. He told me to call a neurologist. I live next door to a good neurologist. I called him and I couldnt get in to see hom until the next day, so he came over my house that night after he got home. He tested the feeling in my leg and saw me attempt to walk and admitted me that night.
I had an MRI the next morning. 15 minutes after I was out of the MRI machine, my friend and neighbor was sitting on my hospital bed telling me I have MS. I have 15 lesions on my brain. 1 deep. I have 9-11 lesions in my upper neck, 2 into the spinal cord. And 7-9 on the lower spine. I have it pretty bad.
I am going Tuesday May 1 for optic nerve tests and an EMG.
I just started Copaxone last Thursday. Man does it STING!
I am just now walking without my walker, I do have a slight limp. I cant drive yet, soon I hope.
SO thats me, in a nut shell. Thanks for having me here.
Anyone else have the optiv nerve test or an EMG done? WHat do I expect?
Kate
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As I sit here this morning in the pre-dawn hours and write these thoughts, I am reminded of how my wife would often wake up early to send me a text,or a link, or an I love you note that I would see when I woke up.Today is day 61 without my love of my life. I am learning to cope, and trying heal but this is truley a walk through Hell. I try to honor my wife by staying strong, but at times I feel...
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I was diagnosed with Temporal Lobe Epilepsy a couple of days ago. Apparently the Deja vu and nausea episodes I have been having for the last 7 years or so are actually seizures. Thankfully, because I have only ever had focal aware seizures I am allowed to keep my licence. However I am struggling to come to terms with the diagnosis. It doesn't really seem real. I'm interested to know how others...
so i cant advise you on any of the other testing but there are alot of other people on here who can and will withen a very short time...
Your girls look beautiful by the way..smile...
And welcome aboard...there are alot of knowledagble people on here...myself not being one of them yet...grin.. I am still in the learning stages yet...
Heather
Welcome to this group--you'll meet many wonderful people and gain a great deal of knowledge and support! And how lucky for you that your neighbor is a neuro! Good luck with your tests!
Only thing I know about an opic test is my Neuro used a pen light to look in my eye and said my opic nerve was ok.
i had the optic nerve test. It was one of my first confirmations of MS. My MRI was classic, the expression on my face was blank.
They started you on Copaxone quick. Better attention than it is was even five years ago.
Don't know about EMG.
God bless you Hon. Rely on that great Man of yours and you will be fine. This stuff comes and goes.
My grandson gives me healthy hugs...Sort of like vitamins... He hugs me really tight, then says how you feel, you know when I answer better it is for real, they work! You have four little girls teach them the healthy hugs and you will get well quick!
Prayers for you and yours!
Bigouies (jangy)
I think you'll love being here, although none of us love our MS. You'll get lots of information and support when you need it. I look forward to getting to know you.
The burning only lasted 1 day, My left leg is still a bit numb, thats been about a month. Hope it ends soon for both of us! Good Luck!