Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

0 Online

deleted_user 10/30/2007

AHHH I'M SO PISSED RIGHT NOW! If there was a smiley that had a face of RAGE.. that would be mine right now! I'm currently in the process of seeking assistance for my co-pay for Rebif. I got a phone call and I will not get any help. How are hard working sick people to survive. What do I have to do??? Have 5 more kids.. Quit my job.. Try to beat the system??? I know that isn't the way but it angers me!!! My rent is 1,100 a month. I'm a single parent. I have a car note, car insurance, basic SURVIVAL BILLS (phone, food, etc). I can't afford the extra 100 a month!! My checking account is all out of wack! I can't work another job because I know I will run myself down!!! What do I do?!?!? I need my meds!! The worse part is that med fusion isn't sending me my meds now because I have a balance of 280 with them. I used my last syringe yesterday. I was on and off Rebif due to my high enzymes. I'm finally at NORMAL enzymes with 44mcg. I fear getting off the meds will ruin the tolerance my body has built up to it. This SUCKS. I HAVE NO MEDS. I'm forced to work another job now just to make ends meet. I have great insurance and Rebif is already getting between 1600 to 2100 from Medco.. I just have to come up with the extra 100. SOOOOOO 280+100=380. I'm ultimately crushed now. I can't deal with this right now. There has to be a better way.

deleted_user 10/30/2007

ahhh I understand the boat ur in..I think its the National MS society will help with some of it...its not much tho. is there any orginization that can help?? Explain ur situation? I was off Rebif for over a year and had a major set back with my MS...but I am not saying u will....sounds like u called the company that makes rebif, but if u didn't maybe try that and see if they will settle for what the insurance will give them, again expain ur situation...I know how hard it is, and u have it harder ur single....I wish u lots of luck...
Hugz
Morgaine

deleted_user 10/30/2007

try the msaa-the m.s. society- and the rebiff company.they would make more if they waived the copay.mabey the pharmacy also.
i don't recomend having 5 more kids though,i have 5 and it wouldn't help in this situation...LOL just kidding.
good luck to you

dnjnm 10/30/2007

Most certainly call the manufacturer of ReBif. And, also, check with www.pparx.org They referred me to someone that could help, and I had insurance. Also, there is www.togetherrxaccess.com/home.html but I think this one is for people with no insurance. Also, have you applied for Medicaid?? There is allot of help out there, you just have to be persistent.

Good Luck!

deleted_user 10/30/2007

I feel for you...I exhausted every avenue I could think of and after 6 months of new meds I joined a clinical trial. Got the next year and half covered anyway (LOL). It is extremely frustrated to be 'middle class'...it's a joke actually. I wish you all the best...maybe you can find that 'assistance' that everyone talks about. Sorry for the sarcasm..this is one street I have been down gazillions of times and don't want to go anymore!!

deleted_user 10/30/2007

thank you** I'm happy I vented. lol

deleted_user 10/30/2007

I was exactly were yor are one year ago, many people here remember Im sure. I also am a single mother 3 teenage boys, work full time, condo payment, ect,ect.I am on Betaseron and have a $250.00 co-pay per month. I had no idea how I was going to do it. I just got on the enternet and phone and started calling who ever was out their.. I finally found NORD (Nastional Organization of Rare Diseases) they are paying for everything my insurence dosnt. thats as far as meds go. I will have to apply again in jan. but at least this year I didnt have to worrie about my meds.
good luck to you Marisable.
hugs
april

deleted_user 10/30/2007

I dont know about rebif but avenox has programs and you send them tax papers and they figure how much you can pay. I pay 100.00 but I know someone that pays 25.00 month. Call rebif and see if they have such programs

deleted_user 10/30/2007

I have seen a commercial that Montel Williams (he has MS too) is in and it is to help people that are uninsured or underinsured called PPA I don't know how it works exactly but I looked up the website. http://www.moore-pr.com/montal.html

deleted_user 10/30/2007

I looked at that website a little closer and this would be better to go to I think http://www.freemedicinerevolution.com/

deleted_user 10/30/2007

wow thank you all for reaching out to me! It is amazing to be a key away to such great people. I am so happy I'm not alone in this.

deleted_user 10/31/2007

You are definitely NOT alone! *HUGS*

rhonda1964 10/31/2007

I will be in the same boat in June of 08 if medicaid doesn't kick in, so know you have my prayers AND support. Does McDonald's offer benefits, I can flip a burger in addition to asbestos litigation! :o) BTW- those 5 babies would someday turn into 5 teenagers...There IS something worse than MS. :o)

deleted_user 10/31/2007

I am on Copaxone and I know that they offer financial assistance as well. Perhaps your Neuro would consider putting you on one of the other meds if the Rebif people are not willing to work with you.

TexasMS 10/31/2007

I would contact Montel Williams, I hear he has helped many

deleted_user 10/31/2007

Rhonda you are funny! Thanks for the laugh. :)

Join the Conversation

Posts You May Be Interested In

acknowlodging

Posted by: GrassIsGreen

Last Reply: GrassIsGreen 02/14/2016

15

I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
Curcumin / Lecithin

Posted by: Barbel

Last Reply: cgreens 08/31/2019

16

Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel

acknowlodging

Curcumin / Lecithin