Multiple Sclerosis (MS) Support Group

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/ Multiple Sclerosis (MS) Support Group

HELP!! Am I crazy??

deleted_user
deleted_user
Hello fellow Daily Strength Peeps...I need your help..I was DX with MS in April of this year. Im ok really, but Im having issues with my hands shaking and involentarly (not sure how to spell that) twitching of my arms and legs. Now, what I need to know, is this MS symptoms getting worse? Or is this just..I dont know..too much caffine?? It honestly kinda freakin me out. The problem with having MS is its making me paranoid. Now I swear every time I run in to a wall (fyi, naturally clumsey over here) I am afriad Im relapsing, which is very,very scary for me. The twitching is worse the day after I take my Avonex shot. I feel like someone kicked my butt all over the place and I twitch like a chipmunk on meth...so please let me know if this is common or if should see my doctor or if I should invest in some kind of therepist.?? Thank you everyone and God Bless!!
deleted_user
deleted_user
no you are not crazy the shaking is part of the ms. Its not going anywhere you are going to have days where it is not so bad and days where it totally sucks
deleted_user
deleted_user
Thanks superdave... Is it just going to get worse??
deleted_user
deleted_user
all deprends on your progression there are no definite answers unfortunately this is one of those very unpredictable afflictions. I have days where im really steady and others that i look like i have the dt's or something
deleted_user
deleted_user
You are not crazy or this could be the looney bin community. It is more than likely the MS, it is common to have that fear as you learn about your body handling MS. Speak with you doc and call Avonex for info they can look to see how often it is reported(increased shaking and twitching). Being new to the dx it takes awhile to learn how your body handles MS and your symptoms. Keep that journal that Avonex sends you of your MS symptoms. That way you have a better idea when you talk to doc about it. Stay strong! Hugs Annie
deleted_user
deleted_user
Thank you guys. I feel a little better. Scared.lol, But a little better.
deleted_user
deleted_user
"no your not crazy it get like that some time, some day a worse than others but it will get better in most cases when you take your meds on time I have be dx for soon to be 6 years on Nov, 30th this year and each day is still a struggle.
heather1
heather1
chipmunk on meth...grin.. must say i like that one...grin...

and as above ...nope your not nuts...

superdave summed it up perfectly... you will have good days...you will have crappy days...

enjoy the good days...get through the bad ones... life does not end with the dx..it just needs adjusting...grin.. somedays more than others....

but you have found a great community here in which to ask questions and to learn from everyones personal experiences...smile...

hugs
heather
deleted_user
deleted_user
lmao.... chipmunk on meth... that's great. you're not crazy at all. i have the same thing only it's in my face. the corners of my mouth twitch ALOT. it's worse if i'm not feeling well, having a cold is the worst when you have a mouth that can't control it's self
SpyderNCSU
SpyderNCSU
Everyone has been right on point..... nothing to add but compassion. Welcome to this community, your haven in the storm....... Best wishes, Steve

PS: chipmunk on meth, what a thought......LOL
deleted_user
deleted_user
I understand your fright and confusion. I was dx Dec. 06. Only recently I started having some hand shaking and my left arm and shoulder twitching. I've had a low grade fever so the doc said it might have something to do with that. Even the slightest change in temperature - including your own body temp. - can cause symptoms to show themselves but they usually go away when you cool down. I am finding that this is an unpredictable disease for sure! That's why it's good you are here. You'll find lots of advice and help!!
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