Surely the doctor informed you about moving after the LP?

You are now in a select group of people. I told my neuro last week my head felt like a bowling ball on a toothpick. LOL!!! PT started Friday.

Your muscles are probably tense. Just try to relax. With all those kids that might be hard.

KK

besides my meds... i have hot rubs...cold rubs...grin... vibrating pillows... no commets necessary from the peanut gallery and you know who you are...smile...
heating pads... anything that may work in the slightest to help....

good luck.... perhaps your family dr. may be able to help you there..

hugs
heather

First want to say sorry you may have MS, and that it's good you are seeking out support

And sounds like you may have had a leak like me after your LP! Isn't is just HORRIBLE?! Yes, I wanted to die, seriously. Partly b/c I was also 22 yrs old, paralysed and just found out I had MS, Buuut, I am not talking just a severe headache, more like the most gruesome migraine you could ever imagine. I was also in bed for a solid week, with 24/7 pain and whenever I tried to even lift my head an inch, my head felt as if it would explode. Finally, boyfriend at the time got me in my w/c as I just HAD to get up! Well, I tossed my cookies everywhere from the headpain of my brain almost sitting directly on my spine since I had lost all that spinal fluid! Stupid docs did not catch it, but I leaked and should have been patched! It was just bad :(

I do know what you mean about the constant stiff neck, have had it for years. I do try to roll my head around and then the other way, so you might try that, as it does loosen up a bit. Ice and/or heat could also help do the trick.

And labor with no pains meds?! You go girl!

Good luck!

When I had both of my children I had to have epidurals. The first child was an emergency C-section. Well, I ended up in the ER both times because the pain wout spasm up my neck and go into my head like a bolt of lightning!! It was the most excruciatiing pain every. But I'm with you on the daily head and neck pain. I wake up with it everyday and sometimes it hurts too much to hold up my head. I will be interested to see if others with MS get this too. Maybe we have lesions on our cervical spine? I have to get my MRI next week so I won't know yet. I also see the Neuro friday, so I'll ask him. You should really call your doctor about the pain. Sometimes if it's severe enough they inject blood into the area to plug up the fluid leak.

I can totallly relate to how you feel!!

Hugz

Thanks so much for you guys support! At least I dont feel so alone. I will be praying for each and everyone. Keep the faith. God Bless!

It just occured to me.. Topamax is being used for migriane headaches... it is also a anti-seziure med... alot of seziure meds are also being used for nerve pain... this may fall into a catorgory that your neuro may look at as a possibilty for you...

hugs
heather

Thanks for posting this! I'm sorry your suffering, I use ice packs & heat also. I feel like such a bonehead though, 12 yrs ago was my 1st episode where 2 lesions found. All these years I've been dealing with a terrible stiff neck that gets worse at different times of the year. I never once thought or had any dr. tell me that this could be part of the MS. WOW! Thanks for sharing!

SIGH.....YEAH, THOSE ARE A PAIN IN THE, WELL YOU KNOW. I AM ON INDERAL TO CONTROL MIGRAINES AND IMITREX FOR WHEN THEY GET OUT OF CONTROL. I MAKE THE HUBBY RUB REALLY HARD ON MY NECK FOR A FEW, RUB HARD ENOUGH TO GET DOWN IN THE MUSCLES. THAT DOES THE TRICK SOMETIMES. WHEN THAT DONT WORK I TRY ICE PACKS OR I TAKE A REALLY HOT SHOWER AND JUST LET THE WATER MASSAGE MY NECK. BE CAREFUL THOUGH, HOT SHOWERS MAKE YOU HAVE TREMORS. AT LEAST THEY DO FOR ME. GOOD LUCK, TAMMY

oxycodone is a wonderful friend for the pain...but weekly massages can also help. By the way Heather...those massage pillows are expensive...you do know that you could just use your vibrator...just roll the thing back and forth on your neck and head...also you could have the hubby put it on your back for you! And well if it just happens to slip to somewhere else then you would have a happy accident on your hands. -emmie

sigh so is weed...grin... and i think i ran out of spoons so even if the vibrator slipped it wouldnt help today...rofl...

Neurologist in a big Hospital said his mom gets bad headaches when I was in the trows of a migraine after neck surgery. He said the greatest relief is Ice you neck (really cold) and heat your feet. It draws the blood from the engourged veins in your head down and away.

I have had headaches that this does not work for then again I have had pretty bad ones that the combo of pain meds and this therapy worked...
'
My 2 cents, but hope it helps.

Thanks so much for the overwhelming response to my question. Everyone has helped with it in many ways. Kathy

i will definately have to try that one bigouie...btw....nice to see you back...grin.... have not seen you on inawhile