Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Ok, this MS thing sucks big time. I have been doing pretty good lately and now all of the sudden I am freakin out. My husband and I were on the phone and I was trying to tell him something and I was mumbling a bunch of mumbo jumbo, but like I knew what I wanted to say in my head,I just couldnt get the words out. SCARY AS HECK. Then, today while walking through the grocery store I got dizzy and felt like I was going to pass out....among other stupidlittle things that keep happening, like numb patches in weird spots, and forgetting where I am. I HATE THIS. I hate not knowing what is going to happen next. Oh well, I guess I am in better shape than some....but it stil inhales deeply (sucks).
I wish this would just peak, get it over with, and lets move on! Does that make sense to anybody. Like, just get me to the worst point I am going to get to and lets figure out how to make it work....quit making me wonder what is going to happen next.....I am so stinkin sick of it.
I am also sick of people going "Oh, you have MS? wow but you look so good, you must have a mild case" WHATEVER..... or "but you look so good, I forget that you have it sometimes".
Can I fricken tattoo it across my forehead so that when people have expectations of me that I cannot fulfill they can be reminded that I am not fricken wonder woman?
AHHHHHHHHHHHHH......SO SICK OF THIS.
Sorry, butthanks for lettin me vent. Kim
I wish this would just peak, get it over with, and lets move on! Does that make sense to anybody. Like, just get me to the worst point I am going to get to and lets figure out how to make it work....quit making me wonder what is going to happen next.....I am so stinkin sick of it.
I am also sick of people going "Oh, you have MS? wow but you look so good, you must have a mild case" WHATEVER..... or "but you look so good, I forget that you have it sometimes".
Can I fricken tattoo it across my forehead so that when people have expectations of me that I cannot fulfill they can be reminded that I am not fricken wonder woman?
AHHHHHHHHHHHHH......SO SICK OF THIS.
Sorry, butthanks for lettin me vent. Kim
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel
we're here for you. try to get some rest until you feel better!
a LOT of people think of JERRY'S KIDS when you say you have MS
When I say I have MS, I usually clarify with "Multiple Sclerosis", and some still ask or say something like "and that's like Jerry's kids, right?"
They're probably also thinking it's all in your legs, not in your head and spine
I had that same feeling and while I couldn't get my thoughts my eyes were stoned feeling and my mouth kept watering.
I felt like I was out of my body.
I get the but you look so good crap too. Thats the worst thing about MS. I'm glad you can vent and get feed back from people here at DS.
Hugs
Today I drove to a gastro Dr.'s office only on the way i forgot I was going there. I also forgot what side of town it was. Then I forgot how to get from the wrong side of town to the right side of town. The trick is not to panic and then the memory dose come back.
No one except me, and now you, would ever know that happened to me. Nor could anyone see it by looking at me.
I know how you feel. Been there. Done that. Felt that.
I can write well though! My hands know exactly what my mind is saying, and I don't have to move my lips...just have to keep hitting the backspace cause of my left hand that has like tremors or weakness or whatever it's called. It just doesn't work like it's supposed to.
Anyway, I understand. And it's ok to vent! It helps you get out your frustration. The key is though, not to dwell on it. Get it out and move on. If you dwell on it, it will only make matters worse. Then not only do you have to deal with all that, but depression too.
It's not going away, with out a miracle, so we have to learn to deal with it the best we can. And learn what we can from it...like patience and how to take care of ourselves and not over do it, just stuff like that.
Any way, I hope you feel better soon.
God bless you!
Darla