Hi everyone, I just wanted to let you know, I had my first Tysarbi infusion on Monday. Everything went wonderful. The needle didn't hurt. He gave it to me in the crease of my elbow. Nice vein I was expecting a 1 L bag of saline solution. Here it was the size of a pocket on a shirt 4x4". I had a male nurse named Omar. My husband came with me. Omar explained the procedure and asked me a couple of questions and started the procedure. He had to get the drip going. After a while of discussing Tysarbi PML cases. He assured me there is risks with aspirin. There have been four cases, out of 30,000. He said the risk is so small. And not to worry. I was very relaxed, and I was sitting there wondering, when he was going to add the Tysarbi to the IV. He laughed and said Nancy were halfway done. He was watching very closely for my breathing all the while with a smile on his face. I have never had any D.M.D.'s todate. He took my vitals, three times. Before during and after. My blood pressure my temperature and my pulse. While I was sitting there. My left hand is always been curled. I could straighten my fingers. When I got home I felt fine. I had some lunch and laid down for an hour. I had a dull headache, took a couple of Advil. It went away within an hour. My legs have been very painful, achy feeling. That is gone. I slept like a baby. I was able to roll on my side and back, which I could not do before. This morning I had a shower, and it didn't wipe me out. I felt strong and had more energy. Today I have not rested, and I'm only on day three. He told me six months to feel the full effect of Tysarbi. He said if I see you a year from now and you are still in the same condition. Tysarbi has done its job. But do not be surprised if you see improvements. Sorry for the long post, but I wanted you all to know. I had a really good experience.
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