Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Good Evening Everyone... I have not been on here for a while... for a few reasons. One, primarily being that I was in the hospital and the same day surgery turned into a six day project. The other being, as I read and get caught up (LOL or try too), I'm not sure what to write to respond to the posts on here. So, here, for what it is worth, is some thought processes to take things in a different direction, or thought pattern anyway.
First of all, I finally got my port inserted. An infection, amongst other things, turned it into an adventure, and I am left trying desparately to pick up the pieces.
THey (hospital) seemed to have maxed my body out on a combo of solumedrol and oxycodone/dilaudid. Normally, that is not a bad combination, but for me, not one that I'm particularly fond of anymore.
Anyway... got out, and (against medical advise) have gone "cold turkey" off of everything. I need to figure this out, and get back on my plan or fight, or whatever. OK, so if I technically only have 10 or so weeks left of this "terminally" ill crap (sorry, I'm tired, therefore in a bad mood), then, I don't want to do it so drug induced tha I pass the days away in a stupor. I feel horrible though because I feel like I have WASTED 2 days, while my kids have merely existed around me, while I am trying to get back on my feet, and get going with life again.
And, people, argh!!! My friends say "well, if you need anything..." I want to know - why aren't they there. Why do they wait for me to say something??? I need (or, actually my kids need) a gallon of milk, or a bag of groceries, or some gas for the car, or... help with homework, or laundry, or... get what I mean???? I HATE asking, I want them here already... wishful thinking.
Anyway, thanks for the opportunity to ramble for a few minutes. Please, take the time, or the opportunity to be nice to each other. AND, enjoy life, and the time that we have been given.
God bless,
First of all, I finally got my port inserted. An infection, amongst other things, turned it into an adventure, and I am left trying desparately to pick up the pieces.
THey (hospital) seemed to have maxed my body out on a combo of solumedrol and oxycodone/dilaudid. Normally, that is not a bad combination, but for me, not one that I'm particularly fond of anymore.
Anyway... got out, and (against medical advise) have gone "cold turkey" off of everything. I need to figure this out, and get back on my plan or fight, or whatever. OK, so if I technically only have 10 or so weeks left of this "terminally" ill crap (sorry, I'm tired, therefore in a bad mood), then, I don't want to do it so drug induced tha I pass the days away in a stupor. I feel horrible though because I feel like I have WASTED 2 days, while my kids have merely existed around me, while I am trying to get back on my feet, and get going with life again.
And, people, argh!!! My friends say "well, if you need anything..." I want to know - why aren't they there. Why do they wait for me to say something??? I need (or, actually my kids need) a gallon of milk, or a bag of groceries, or some gas for the car, or... help with homework, or laundry, or... get what I mean???? I HATE asking, I want them here already... wishful thinking.
Anyway, thanks for the opportunity to ramble for a few minutes. Please, take the time, or the opportunity to be nice to each other. AND, enjoy life, and the time that we have been given.
God bless,
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
i don't know you and i can't imagine what your going through.
i hope you feel loved.i wish i could send you some love
If I were there I would get that milk and groceries and gas for u,and do that laundry for u , I am however lousy with the homework...But I can offer u some online shoulders to lean on ;)
All my love and hugz
Morgaine
I have learned that if they say to let them know if you need anything, go ahead and ask! If they didn't want to help you out, they wouldn't even offer. I have learned this in my own house. Example: I know, you would think that when the trash is overrunning onto the floor, someone would take it out, but now, instead of getting mad, I just ask someone to take it out, and they do. You will learn, and it gets easier to ask for help! Best Wishes!
But sometimes we have to let our angers go and just ask...that surely weeds out the "unworthy ones"
hugs
april
perhaps though...just try to ask for it?? I sense that your very independant so it must be hard for you...and it would be so much easier if they would just do it..sigh...is there one friend that you could explain how you are feeling to?? Then she could explain to a few others and they could organize it so that someone each picked up one chore a week or so...to lighten the load for you for a while....
feel better soon...
hugs
heather