Yep I get that. Also get where it feels like someone is pouring molten metal or alternatively cold water down inside my waist into my legs. Then I'll get what I describe to my husband as a bunch of little ninjas with swords slicing at all the blood vessels and muscles inside of my legs and I wish he could go in there like Dennis Quaid in that movie where he was shrunk and injected into Martin Short - anyway so that he could zap the ninjas like in a space invaders game. My husband said he was better at PacMan and of course that's not quick enough to get the ninjas. lol Well at least while I was typing this, I got my mind off the little guys. lol Anyway Ellen, I can relate. We should compose a book for MSers of pain descriptions to take to the doctor's with us. Like burning cold, being stabbed in the head with an icepick, hit in the back of the head with a baseball bat, run into by a transport and pinned against a brick wall. Okay, sorry, I got carried away there. Stay strong.

Hi, I get the same symptoms. Today I had a terrible day, it felt like I could not move. That my legs where in cement and my arms tied up. It is awful. I know what you are going through. I take Avonex, do you take anything?

I dont take any meds specifically for my MS symptoms at this point. I have a scroll of MS symptoms and the docs are yet debating whether it is MS or not...one doc says yes definately and another doc tells me "not enough there" ...and wanted to only know if I was in any pain. Well, at that point, no. Would like another opinion. Would be great if one could get another opinion without having to go through all the testings all over again, huh?

Thank you for your replies!! Very helpful! Hugs Ellen

Ellen,

You can get a 2nd opinion w/o re-doing all the testing. You can get copies of all your MRIs and other test results, dr's notes etc - on request. My understanding is that it's pretty standard procedure...I'm doing it even though I'm pretty confident that we're on the right track w/ my first dr - just reassurance - and covered, so why not?? god luck - Diane

Hello Ellen... I haven't been diagnosed with MS... Doctors diagnosed me as psychosomatic disorder.. but have very similar symptoms that you have as well as mshaiku...

I have melting sensations all over my body but especially in my face, mouth tongue jaw joint area... feels like my tongue is dropping down into my throat...

My arms and legs feel like dangling, and don't have full control of them. I lost my balance. I do get the cold sensation down my legs... I also get this twisting skin muscle sensations all over my body...

I also suffer from bad tremors... but appears to be caused by emotions... anxiety, worry, fear..etc...

People think it's all in my mind... but I don't think so...

if people think its all in your mind then i guess we are all going crazy?? just if they could feel what we do then maybe they will change their mind?

Could it be inflammation! I have the same thing but it depends on what I eat that causes the melting burning feeling in the back of my legs and my knees or sometime I'm freezing in hot weather. Weird but I understand what your talking about, I'm not on treatment either just healthy lifestyle and vitamins. No pain at all