Friends, I need some help. I've been "diagnosed" with MS for almost a year, by my old neurologist in Indy. I live in Ohio now and today met with my new neurologist. Now, please keep in mind that I've had various symptoms since 2/05, including 2 relapses, and have been through every test there is for MS, and my old neurologist felt that I had MS and started me on Avonex. Well, today my new doctor told me he is "not convinced" that I have MS at all. Now, he could not tell me why my feet are numb, why I have L'Hermittes, why my hands sometimes tingle, why I'm sometimes overwhelmed by fatigue, why I have PEED ON MYSELF!! He couldn't tell me why! Just that he's "not convinced" I have MS. I have to have more MRI's. I know it seems like I should be happy that maybe I don't have MS but I've been living my life the last year thinking I have MS and now suddenly, someone comes along and thinks maybe I don't. Who is wrong, my old doctor or my new doctor? And if my new doctor is wrong, isn't taking me off the meds the worst thing he could do? When I came to DS, I felt like people here understood what I was going through and that I understood everyone else. Now I feel like I fraud. How can I say I understand when maybe I don't, maybe I don't understand at all! I don't understand why these stupid doctors can't figure this S*&t out and tell me what the damn problem is, and I don't understand why suddenly I feel like I'm crazy!! Is this all in my head? I didn't make this stuff up, it's real! Don't doctors realize what they do to someone's life when they tell them they have a chronic illness?! Maybe I don't deserve to be on this site at all.
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