Well, for me, I ask medical questions here, because when I ask my doctor, I usually get my nurse, and she doesn't really know which is the best thing to do. Because everyone here has the same disease as I do, I figured that the things they do and there advice is just as important as my doctor's because they always tell me that they do not know much about this diease. So, if thngs work for other people that my doctors don't know about, I would be willing to try, because my doctors don't live with this disease every day of their life. But, your right, I do see your point. I guess, I like to know what people are doing in similar situations.

JMHO, OC, YMMV, HAND

ALWAYS

Larry what the ________did you say!!!!!

Hi, I know it is nice to compare medications and symptoms but I guess I should of been more descriptive like someone asking if they have MS or not. Those type of questions. Take care, Margaret.

I'm with ya, but my neuros and the "helpline" nurses often even contradict each other. Shamefully much of my awareness is self taught from internet and OUR experiences should only be guides on the path to enlightenment...ah so grasshopper. sorry, got into some kind of zone there...

just my humble opinion, of course, your mileage may vary, have a nice day

always :)

You have not had this disease very long. My first episode was in 1960 & no one had any idea why I was paralyzed.

You are responsible for your own health. I never go to an appt without having a list of questions to ask him. I am well researched on this MS.

If you have a "young" doc, graduated since 1990, he will have an idea what MS is. If your doc graduated before then, you know more than he does.

Never take anyones advice without doing your own research.

I was born with SBO in 1959, so I've had issues since the womb days. It's affected me my whole life. 1989 I started with my chiropractor. I'm in better health since LDN than ever, and since splitting from my family I'm doing the best than in YEARS.

"MS doesn't cause pain" that and other equally brillant platitudes show me how knowlegable the Dr's are..
I've learned a few things in the last 11 years...I now have an excllent Dr but when it comes to MS dr's are rarely more than a prescription pad...like Kelly said we are responsible for our own health ....do consider what you read though...the prisoners will tell you what jail is like better then the guards will.

Hi Maggies,

You live in Canada a place where health care is a different animal all together. For me I will never give up research and I do know more than my doctors. I have recruited two or three doctors I will be working with in the area that I live but I had to fly to Atlanta to get treatment and my diagnosis took many twists and turns. I knew my illness was of a sudden onset after I had a biopsy clip placed in my breast made of stainless steel/nickel (I was highly allergic to nickel). It took me five years but I was finally diagnosed with mold in my breast caused by the procedure or the metal. If I had listened to my doctors I would have given up a long time ago. And not many doctors know about biotoxin disease including doctors in Canada but it is a multi-symptom, multi-system disease and I ended up with Secondary Adrenal Insufficiency among many other symptoms. Biotoxin disease also mimics MS. If we had decent research in this country we might find its the cause but that wont happen because the pharmaceutical and insurance companies are too powerful. Just look at the cover up happening now with the mercury poisoning epidemic also called Autism. Here in the USA our health care system and those who regulate it are corrupt and even if doctors wanted to think out of the box they face the possibility of getting their license pulled. Pain management and pain medication policy is a joke with doctors running scared of being prosecuted by a DEA that is only concerned with keeping power and their jobs. If you think Im being too political you have a right to your opinion but I think I will do everything to fight this corruption. And I will continue to educate the doctors who are willing to listen. Do you know testing for a biotoxin illness only takes five minutes and it is a test that is standing up in court over and over again?

In conclusion as a former federal auditor I have seen first hand what happens when corruption dictates our health care policy. If you believe everything a doctor tells you without doing your own research I feel sorry for you.

Because doctors have no time to answer. I am a nurse, CRRN,so I am qualified to do medical education in rehabilitative disorders. And everyone has the right to share expericences, don't they?

sorry but i have to chime in hear.over the 7 years it took me to find out what was wrong with me i met and asked allot of questions to over 20 highly educated idiots(dr.s)
that's all i have to say on this matter

Thank you i am so sorry for asking a question about something i think she thinks i was asking her opinion. I was not.

i had a neuro tell me that there was no pain with m.s. i had another neuro tell me that there is no fatigue with m.s..
if i had only asked my dr.s do i have m.s. and not people who have been living with this disease i still wouldn't know what was wrong with me and still wouldn't be fighting it

i do have a great primary care dr. now.if she doesn't know the answer she won't stop looking untill she finds it.i also have a great pediatrition for my kids.i completely trust what he tells me.so i know they are not ALL bad
but i have considered making tshirts that say- M.D. does not spell God-
LOL