I take Baclofen as well; it helps with the spasms. But, I find that Neurontin helps more with the tingling and what I refer to as "nerve pain."

There are some things that can help with the tingly sensation if it's true nerve pain. Neurontin, already mentioned, is one. There are other neuroleptics that can help as well. If the tingling is merely sensory, it's something that you may have to get used to.

Baclofen is well known for relaxing your muscles AND making them feel like Jello. That's why I switched to Zanaflex. Even though it's more sedating, it doesn't cause the same type of leg weakness. Talk with your neuro and see if there are other options for you.

-Karen

sorry to be so blunt but its a case of dealing with it, Ive had it for 1&1/2 yrs. I hate it it is aweful everything Ive tried has been hopeless..... But not every1 is the same, somethings help for those but it may not work for others. Have faith and it or something may work

its just like burrs said sweetheart this disease is like the nuber of personalities on the planet. Everyones disease process is different in how they react to certain meds. Our responsibility I have found is to be as open and as communicative as possible with our doctors about what we are going through. I know I have been a thorn in my Doc's side when things seem out of wack but it has probably saved me from some side effects of meds, helped with my depression, taught me patience with this Monster pain in the arSs , etc. I am not trying to say don't talk to us about what is going on I am just saying that with this condition it is of upmost importance to talk to your doc and keep that line of communication open for both of your sake. Docs are people too as much as it is impressive to see all of the framed diplomas on the wall they need help in the area of treating you. In essence we are all just people and we make the same mistakes and have the same type of triumphs. I know what miserable feels like first hand believe me. I hope that this post does not effect you negatively I just feel like it needs to be said. God Bless and keep coming back we are with you.

Thanks Everyone.
All of your thoughts and opinions are always welcome and appreciated. As I may have mentioned I was just diagnosed 2 months ago, and only started with my current Dr last month. So we are still working out the kinks. I go to the Mellen Center at the Cleveland Clinic, and I see the medical director, so I think I am in very good hands. I hope it will be just a matter of time and trial to find out what works.

THANKS