
Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.

deleted_user
When I have an MS relapse, I feel like someone's hit me over the head really hard. I can't drive or anything. I have a hard time doing anything. I feel like I just want to sleep, but I can't. When I'm not having a relapse, I still feel bad. When I'm outside and it's cold, my legs go stiff...I go stiff all over. If I laugh too hard, I pee my pants. If I don't hurry and get to the bathroom, I pee or poop my pants. The colder it is, the harder time I have walking, like I'm freezing stiff. The other times I've had MS relapses, it's been bad. This time it has gotten way worse. When it's warm outside, I just feel sluggish all the time. Now, on top of all that, it has been recommended that I excercise! How do I supposed to excercise when I feel like that? I haven't been wanting to sleep or eat or anything here lately. I just feel like crap. Does this Rebif stuff supposed to help all that? I even forget what I was going to say! When I started out typing this, I was going to say something different. At first I thought all this was kind of funny, but now it's gotten bad. I don't know what to do anymore. I don't want to worry my husband by complaining to him all the time. I just don't know what to do...
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I hope your Rebif calms the MS attacks for you. Yes, the coldness is horrible some days (today is a great example, but my blood is still summer thin), the heat is horrible in the summer (praise for AC), and finding a perfect medium is difficult.
I guess the best thing I ever did was to pull myself up by my bootstraps, accept that I have an incurable disease that won't kill me like my brother's did, and get on with the business of LIVING! I write this will love in my heart for you, my dear! xoxoxo Cj