Multiple Sclerosis (MS) Support Group

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/ Multiple Sclerosis (MS) Support Group

Does anybody else feel this way?

deleted_user
deleted_user
When I have an MS relapse, I feel like someone's hit me over the head really hard. I can't drive or anything. I have a hard time doing anything. I feel like I just want to sleep, but I can't. When I'm not having a relapse, I still feel bad. When I'm outside and it's cold, my legs go stiff...I go stiff all over. If I laugh too hard, I pee my pants. If I don't hurry and get to the bathroom, I pee or poop my pants. The colder it is, the harder time I have walking, like I'm freezing stiff. The other times I've had MS relapses, it's been bad. This time it has gotten way worse. When it's warm outside, I just feel sluggish all the time. Now, on top of all that, it has been recommended that I excercise! How do I supposed to excercise when I feel like that? I haven't been wanting to sleep or eat or anything here lately. I just feel like crap. Does this Rebif stuff supposed to help all that? I even forget what I was going to say! When I started out typing this, I was going to say something different. At first I thought all this was kind of funny, but now it's gotten bad. I don't know what to do anymore. I don't want to worry my husband by complaining to him all the time. I just don't know what to do...
deleted_user
deleted_user
Yes, yes and yes. The stiffness in the cold just started for me last year and is so scary I no longer want to go out. dr says nothing, of course. I also hate comlaining about every little thing to my husband, I think he is just as tired of this disease as I am.I am exhausted physically but sleep is a thing of the past - stiffness, numbness, inability to be comfortable anywhere, I understand all of this. how long have you been living with this? know you are not the only one, if that helps at all.
dnjnm
dnjnm
Just from my experience, the ReBif does not help with any symptoms, just suppose to slow progression.
dnjnm
dnjnm
See, I forgot the rest of your question already LOL. Yes, I feel that way, so you are not alone! Ok to complain to us, we all have been there. I feel the same about complaining all the time to my hubby too! He says he doesn't mind, but I feel guilty!
deleted_user
deleted_user
See the neurologist about getting something for these symptoms. Rebif does not treat the symptoms but instead is treatment for the disease intent is to slow down the progression. I wish you luck and hope...
deleted_user
deleted_user
Wow, your comments could have been mine. I take Rebif too but it's supposed to slow down the progression. I have to take other meds for all the symptoms. Feel free to complain to us on DS we totally understand. I feel guilty telling my husband how I feel too because I know he worries about me. Good luck and God bless!
deleted_user
deleted_user
Oh yes feel that most of time. I'd like to crawl in a hole and hide maybe it would find me Hang in there is all we can do
deleted_user
deleted_user
yup i hear ya ,saw the sun rise again this miorningjust can't find a comfy position,it is snowing like crazy here i am so dreading dealing with my driveway feels like them damn winter boots weigh 400 pounds and the longer i'm out there the worse it gets.
ddeadred
ddeadred
Hang in there, darling... You are just speaking everything that I've know all these 14 years with MS. I will say that I've MASTERED peeing on the farm with 2 puppups in tow (on leashes--yes, I can pull down my pants, pee, and back up again and still keep them tethered). I just I've just gotten used to this MS crap! LOL

I hope your Rebif calms the MS attacks for you. Yes, the coldness is horrible some days (today is a great example, but my blood is still summer thin), the heat is horrible in the summer (praise for AC), and finding a perfect medium is difficult.

I guess the best thing I ever did was to pull myself up by my bootstraps, accept that I have an incurable disease that won't kill me like my brother's did, and get on with the business of LIVING! I write this will love in my heart for you, my dear! xoxoxo Cj
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