Hey Everyone, I am hoping that someone here might be able to help me with this. I am not currently diagnosed with MS, but have a rare immunodeficiency that puts me at high risk for autoimmune conditions. I am curently dxed with Lupus and RA. A few years ago a neurologist thought I had MS because of multiple symptoms, 2 positive evoked potentials, and eye issues. He was shocked when my MRI's came back clear (he did Brain and Spine).
A couple weeks ago I went to another neurologist because I was having terribkle headaches. He found that I was having some swelling of the opic nerve and sent me for a Spinal Tap to see if I had Intracranial Pressure, which I do. The surgeon also sent my CSF for more assessments because he said I was at high risk for MS. The results came back with elevated mylein protien levels and a few white blood cells. No Orings, I don't know about IGG.
The neuro told me that the mylein protein and whiteblood cells don't mean anything. I am just conerned though because of my symtpoms and positve evoked potentials. My primary doctor is also concerned.
Has anyoen ever had similiar experiances?
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