Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Recently, I read a thread on here saying there was to much negitivity. I you feel that way, stop reading now. I'm not doing well, it is either get it out here or continue taking it out on my family. Sooo.... here it goes.
About 3 months ago, I started having stomach problems. Went to GP, He sent me to Gasto., Gastro. ordered colonoscopy. Colonoscopy showed a severe case of ulcerative colotis (an auto-immune disease). That was 2 months ago. In those two months, I've gone from "being careful" of what I eat, to this week only able to keep fluids down. I can drink about 1 Propel and 1 Ensure a day, actually today, I only got 1/2 of the Ensure down.
I'm weak, I have a headace, and I need to try to make a health decision. There are 3 surgeries to "cure" this condition, all with various stages of removing the large intestine. Okay, I'm 36, I really don't want to do this, but I do need to eat so...
The thing is, if this is being caused by the nerves in the area not doing their job, then won't removing the large colon and replacing it with the small intestine end up doing the same thing to the small intestine?
With all the other surgeries I've had, there has been a peace or at least an understanding of the logic behind the surgery, I just don't have it with this. I've just not seen any good solutions.
I want to beat this MonSter, but it is slowly eating away my organs. I know I have progressive, but why can't it progess to not walking instead of progressing to other organs. And, if I take out my large colon, what is it going to move to next? It has already weakened my right kidney, and is reeking havoc on my liver.
My GP (whom I think is the best DR. I've had in my entire life) wants me to go to the ER, and get admitted and go from there. NO! I don't want to go back to the hospital. I have 4 kids, 1 in High School and 2 in Elementary, that still need me (the other is already out on her own living in another state). There are class parties, and harvest festivals and book fairs, all of which I want to participate in, none of which I feel up to doing.
I'm frustrated, confused, sick, and...organ by organ... dying.
This too is a face of MS. It's ugly, and depressing, and not often spoke of. But, I'm here, and this is what I'm going through, and I don't feel like sugar-coating it today.
Maybe tomorrow will bring a new out-look, maybe not.
Rana'
About 3 months ago, I started having stomach problems. Went to GP, He sent me to Gasto., Gastro. ordered colonoscopy. Colonoscopy showed a severe case of ulcerative colotis (an auto-immune disease). That was 2 months ago. In those two months, I've gone from "being careful" of what I eat, to this week only able to keep fluids down. I can drink about 1 Propel and 1 Ensure a day, actually today, I only got 1/2 of the Ensure down.
I'm weak, I have a headace, and I need to try to make a health decision. There are 3 surgeries to "cure" this condition, all with various stages of removing the large intestine. Okay, I'm 36, I really don't want to do this, but I do need to eat so...
The thing is, if this is being caused by the nerves in the area not doing their job, then won't removing the large colon and replacing it with the small intestine end up doing the same thing to the small intestine?
With all the other surgeries I've had, there has been a peace or at least an understanding of the logic behind the surgery, I just don't have it with this. I've just not seen any good solutions.
I want to beat this MonSter, but it is slowly eating away my organs. I know I have progressive, but why can't it progess to not walking instead of progressing to other organs. And, if I take out my large colon, what is it going to move to next? It has already weakened my right kidney, and is reeking havoc on my liver.
My GP (whom I think is the best DR. I've had in my entire life) wants me to go to the ER, and get admitted and go from there. NO! I don't want to go back to the hospital. I have 4 kids, 1 in High School and 2 in Elementary, that still need me (the other is already out on her own living in another state). There are class parties, and harvest festivals and book fairs, all of which I want to participate in, none of which I feel up to doing.
I'm frustrated, confused, sick, and...organ by organ... dying.
This too is a face of MS. It's ugly, and depressing, and not often spoke of. But, I'm here, and this is what I'm going through, and I don't feel like sugar-coating it today.
Maybe tomorrow will bring a new out-look, maybe not.
Rana'
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
Dona
Rana'
Good Luck and keep us "posted"
So maybe you might want to try that before going thru surgery.
Now as far as that person who complained about people who are negative and called us whiners well screw her.
It is called free speach just as she has the right to change the channel to... This may be one of the only places that we can whine and someone hears us.
I wish you to be wel soon and I hope you will try looking into these herbs and tonics first. They at least cant so any harm and I know they worked for my daughter and I know they have worked for many people for other reasons. All my love to you and I sure do hope you feel better soon.