Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

cognitive issues

deleted_user
deleted_user
This might be a little long... I have had some bad symptoms since 2005. the past 4 months I have lost memory, peripheral hallucinations, eye pain, loss of eye sight in R eye on 2 seperate occasions and loss of seeing color in R eye... The list really goes on. I am feeling pretty lost right now. I have been to doc after doc, 2 have believed me others tell me to start "dealing with my life and they don't see anything wrong with me" (even though they didn't discuss my symptoms)... saw psychologist I am of sound emotional and mental health. I have seen a neuro last year and returned again 2 days ago, she believes that there is something wrong. THANK YOU!!! I am trying to convince myself that I can remember things, I try to go over my life events over and over and over, but there are things I just CAN NOT remember. There are grey areas in my memory. I put ice cream in the fridge. I stop in mid sentence because I forget what I am talking about. I am not obsessing over this, but I am starting to feel more and more fear when I recognize that it is happening more often. I see an object, a word in my mind it is right freakin' there screaming at me and I can't SAY the word, my mouth just does not move. Doc's through the past year have suggested auto immune (lupus). My neuro is leaning towards ms due to my latest symptoms of cognitive, tremors, eye issues, ect... (opthamologist exam was perfect)... I am more concerned about my brain... what is anyone elses experience with this, does your memory return? I don't understand what is happening to me, I want to take steps forward in finding my own resolve. Thank you for listening, Jenny
CASMIRA
CASMIRA
I can relate to what you said about stopping in mid sentence and forgetting about what you are talking about....it happens to me on daily basis....I also understand tremors...happen at least several times per week....really frustrating...sounds like MS to me and don't stop UNTIL you get a fantastic doc on your side...this is what I am doing now....neuros are really hard to come by when it comes to a good one...hope everything gets better for you...oh by the way...forgetting what you said in mid sentence....that's why I had to quit working!
deleted_user
deleted_user
ahh the cognitive stuff of MS not fun, I hope u find a really good neuro and get some answers.As for me some of it I just deal with, but when I need to remember stuff I have a note pad I keep things written down on.
I wish u well
Hugs
Morgaine
Orsova
Orsova
Try to get hold of a book by Jeffrey Gingold called 'Facing the Cognitive Challenges of Multiple Sclerosis'. Gingold has MS himself so writes from first hand experience.
I found this book really helpful in understanding some of the plain stupid things I say and my occasional inability to string a sentence together.
feisty
feisty
I know it's scary when it happens and you don't know why. What helped me the most was a thorough work up by a neuropsychologist. The test was able to help determine what parts of my brain were most affected and help me find ways to combat the new defects. I think the first step would be getting a DX, but it's not hopeless. I find this symptom the most frustrating, but I've learned to work around it, for the most part. And...once used to it, it can be funny. Be strong. -Jen
Eloise
Eloise
Hi,

I, too, have had perfect eye exams and have been seen by both optometrist and opthamalogist. I haven't completely lost vision, but have experienced the perphieral vision 'images' which aren't there as well as dimming of vision. I've experienced tremors and definitely the memory has been a BIG issue. I also put ice cream in the fridge, but fortunately I discovered it right away. I laugh a lot at myself although I agree that the symptoms can be frightening if you don't know what is causing them. I also encountered a doctor like you described several years ago...who basically told me that I needed therapy...but I was fine mentally. Not all doctors are wonderful, unfortunately, but that is true of all professions.
Hang in there and try not to worry. If you do have MS, worry will only (or can) make symptoms worse and you don't need that. This is a good site for you to visit. You can learn a lot and ask as many questions as you like. Keep us posted on what you learn.

Michelle (Eloise)
deleted_user
deleted_user
I'm going through the same thing, but mine is short term memory. I can remember things from about a year ago and back just fine.

And I absolutely hate doctors that say 'nothing wrong', you're losing your vision, so something IS wrong. Keep digging, there are competent docs out there.
sem
sem
Sounds like MS. I was very forgetfull when I was relapsing and still am a bit. It's hard you know... Casmira is right-get a good neuro. Get diagnosed so you can get some treatment. It will help.
deleted_user
deleted_user
ugg it is definitely a problem for me that I second guess everything I do because I screw up so much then I tell myself I did not mess up because of that but I have messed up, over and over this happens
deleted_user
deleted_user
for me the cognative issues vary in severity. this is the symptom that keeps me isolated. i hate feeling stupid
LarryLDN
LarryLDN
I hated when that happened. When it was with someone else who was just as bad, it was tough having a conversation! LOL. If I didn't experience it myself, I just wouldn't be able to imagine it happening.

I've been using the Franklin Time Management system since 1995, and after a while I noticed that if I didn't write it down, it just didn't get done.
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