
Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.

deleted_user
This might be a little long... I have had some bad symptoms since 2005. the past 4 months I have lost memory, peripheral hallucinations, eye pain, loss of eye sight in R eye on 2 seperate occasions and loss of seeing color in R eye... The list really goes on. I am feeling pretty lost right now. I have been to doc after doc, 2 have believed me others tell me to start "dealing with my life and they don't see anything wrong with me" (even though they didn't discuss my symptoms)... saw psychologist I am of sound emotional and mental health. I have seen a neuro last year and returned again 2 days ago, she believes that there is something wrong. THANK YOU!!! I am trying to convince myself that I can remember things, I try to go over my life events over and over and over, but there are things I just CAN NOT remember. There are grey areas in my memory. I put ice cream in the fridge. I stop in mid sentence because I forget what I am talking about. I am not obsessing over this, but I am starting to feel more and more fear when I recognize that it is happening more often. I see an object, a word in my mind it is right freakin' there screaming at me and I can't SAY the word, my mouth just does not move. Doc's through the past year have suggested auto immune (lupus). My neuro is leaning towards ms due to my latest symptoms of cognitive, tremors, eye issues, ect... (opthamologist exam was perfect)... I am more concerned about my brain... what is anyone elses experience with this, does your memory return? I don't understand what is happening to me, I want to take steps forward in finding my own resolve. Thank you for listening, Jenny
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I wish u well
Hugs
Morgaine
I found this book really helpful in understanding some of the plain stupid things I say and my occasional inability to string a sentence together.
I, too, have had perfect eye exams and have been seen by both optometrist and opthamalogist. I haven't completely lost vision, but have experienced the perphieral vision 'images' which aren't there as well as dimming of vision. I've experienced tremors and definitely the memory has been a BIG issue. I also put ice cream in the fridge, but fortunately I discovered it right away. I laugh a lot at myself although I agree that the symptoms can be frightening if you don't know what is causing them. I also encountered a doctor like you described several years ago...who basically told me that I needed therapy...but I was fine mentally. Not all doctors are wonderful, unfortunately, but that is true of all professions.
Hang in there and try not to worry. If you do have MS, worry will only (or can) make symptoms worse and you don't need that. This is a good site for you to visit. You can learn a lot and ask as many questions as you like. Keep us posted on what you learn.
Michelle (Eloise)
And I absolutely hate doctors that say 'nothing wrong', you're losing your vision, so something IS wrong. Keep digging, there are competent docs out there.
I've been using the Franklin Time Management system since 1995, and after a while I noticed that if I didn't write it down, it just didn't get done.