Multiple Sclerosis (MS) Support Group

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Clinical Trials

deleted_user
deleted_user
I was curious to see if anyone is involved in the various clinical trials that are being performed right now. I am currently in a phase 3 (maybe 2...LOL, not positive) for Fingolimod which is an oral daily pill. So far so good...I know there is no way to know for sure if I have the placebo or the real deal, but my heart beat was down about 20 bpm with the first dose...I will have my second MRI done in December (since beginning the trial in June).
deleted_user
deleted_user
Hi. sorry I haven't written on it yet but I started the same trial about 8 weeks ago. So far so good too. I haven't noticed any differences in my health except a little irritation from having to go to all the appts. and do all their tests.Just more of an inconvenience than anything else and I guess isn't so bad considering the alternative. At least they keep track of you pretty closely. The worst part is not knowing if I have the placebo or the med.
Would love to hear about your results as you get them. Good luck to you--Michele
deleted_user
deleted_user
The visits do slow down (LOL). In the last 4-5 months I've gone repeatedly it seems, but now I'm not scheduled again till December. Do you have to drive very far?
deleted_user
deleted_user
I am also in a clinical trial for a pill called teriflunomide, I don't see the benefits as I was diagnosed and went right on the study, did not want to inject myself. I was recently diagnosed with secondary progressive and maybe things would be worse if I didn't take the study drug or any drug, none of the injections will work for me now
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