Multiple Sclerosis (MS) Support Group

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Avonex is this good do you think

deleted_user
deleted_user
I started Avonex on the 3rd Dec with a half dose, absolutly no side effects what so ever, nurse pleased and told me to do 3/4 dose this week, again no side effects. Hopefully this will continue anybody else been this lucky and continued to be this lucky.

Jo
TexasMS
TexasMS
I started on Avonex at full dose, I did not know I had a choice, side effects were bad for several months but are now better, but once in a while they are bad again. Glad to hear yours were mild and hope they stay that way
deleted_user
deleted_user
is that the one you only take once a week?
deleted_user
deleted_user
Yes once a week into the muscle, have to say my hubby is doing the injections and both times they didnt hurt a bit, he was scared though.

Jo
TexasMS
TexasMS
the only time my shot was an issue (I have been injecting for 6 months now) is when I moved my leg with the needle all the way in. Needless to say it left a mark LOL. I actually posted pictures of that shot if you need to see it LOL
deleted_user
deleted_user
I've also been that lucky w/ Rebif - no flu like symptoms, no injection site reaction - nada! So Wed nite was the first time I took the shot w/o a pre-emptive Advil - woke up w/ chills and nausea in the middle of the nite. Was sure it was side effects until my 4 year old woke up w/ the same thing. We're both better now, but I think I might put off the Fri shot til tomorrow just in case.
Diane
SpyderNCSU
SpyderNCSU
I was dx'd 2-2-07, started Avonex 3-2-07. I have only a mild headache for about 16 hours after the shot. I guess that makes me almost lucky...LOL. Best wishes, Steve
deleted_user
deleted_user
I never have had any side effects either and I have been on it since Jan. 2006. I have had two relaspes though with in a years time so I am looking at other opptions. Hope it continues to go well for you. good luck- erica
deleted_user
deleted_user
I used to take avonex, and i hated it...the side effects were so bad! ESPECIALLY THE CHILLS!!! I'd actually jolt with chills which made me hurt even more...I can't tell you how many nights I'd lay on the couch just praying that it'd go away!
I finally had to stop taking it.

Who'd a thunk of taking a lesser dose! Great idea! That's a great way to wean yourself in to it!
Great thinking!
deleted_user
deleted_user
Hi, I was also on avonex. I had terrible side effects, they were just horrible. I thought I was dying. I could barely finish the dishes. I have been off it for two weeks and I feel so much better. I can do the dishes, laundry, clean, I am not as tired. Anyway sorry I am going on and on. You are one of the lucky ones, congrats to you, I hope it continues, HUGS Margaret.
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