Multiple Sclerosis (MS) Support Group

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Anyone else had anisocoria?

deleted_user
deleted_user
Hi I have just joined this forum and with everything thats going on, I'm really hoping that it helps!

So here's my story: Recently (1 week ago) I developed Anisocoria (unequal pupils) and my right one was not reacting, as a result I was unable to focus near objects i.e. difficulty with reading/looking at the computer. Investigation for that led to me getting an MRI that showed some demyelinating lesions in the white matter. I'm assuming most of you probably have been in that position and know what that means.

Currently, I am in the work up process for a possible diagnosis of MS. My doctors are following my symptoms and scans to eventually get more evidence to rule it in or out. From what I have read I understand that could take years.
I have joined this support group so I can meet people in a similiar situation, be more informed and learn what/if I can do anything during this prediagnosis phase.

I am told that Anisocoria is not a common symptom in MS, however it does not mean it cannot happen. I am curious if anyone else has experienced that also?

Also, I'd really appreciate any advise on what can be done in the pre diagnosis phase in terms of treatment/preventive options?

Feeling really disheartened and scared.
deleted_user
deleted_user
Not much to do in the area of prevention but I strongly suggest you do as much research as possible. I think it was much easier for me to accept the diagnosis because I had researched and read everything I could get my hands on. The symptom that got me diagnosed was facial numbness so I have no advice on the Anisicoria.
I do want you to know that this is a great place to learn and to get moral support!

Best of luck!!!
Eloise
Eloise
I don't have much advice either regarding the pre-diagnosis stage. I was diagnosed within three months of my first obvious symptoms (although I had NO idea that what I was experiencing could be something as serious as MS). The one thing that I could recommend is that you don't overdo and that you get enough sleep. One of the most common symptoms of MS that many MSers share is fatigue. Overdoing it can bring on an exacerbation (which may actually help you get diagnosed).

I wish you the best! I agree with the research to a certain extent. After I started to think that I had MS, I started research and found way too many other diseases that presented with similar symptoms and scared myself silly. I scared myself so much that the MS diagnosis was almost a relief.

I'm glad that you found this site. Take care and keep up updated re your condition.
deleted_user
deleted_user
I don't really have any advice for you, but thought I'd tell you I do have this. I never noticed it until my neuro pointed it out when I was in dx process. It took a month until he dx'd me.

It's never gone away, I've had it for more than 2 years. It's not always extremely noticeable, sometimes it is, depends on the lighting. I don't think it effects my vision very much. I think my neuro disagrees.. not sure how she can disagree as they are my eyes, but whatever.

Good luck to you. Hang in there.
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