Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hi I have just joined this forum and with everything thats going on, I'm really hoping that it helps!
So here's my story: Recently (1 week ago) I developed Anisocoria (unequal pupils) and my right one was not reacting, as a result I was unable to focus near objects i.e. difficulty with reading/looking at the computer. Investigation for that led to me getting an MRI that showed some demyelinating lesions in the white matter. I'm assuming most of you probably have been in that position and know what that means.
Currently, I am in the work up process for a possible diagnosis of MS. My doctors are following my symptoms and scans to eventually get more evidence to rule it in or out. From what I have read I understand that could take years.
I have joined this support group so I can meet people in a similiar situation, be more informed and learn what/if I can do anything during this prediagnosis phase.
I am told that Anisocoria is not a common symptom in MS, however it does not mean it cannot happen. I am curious if anyone else has experienced that also?
Also, I'd really appreciate any advise on what can be done in the pre diagnosis phase in terms of treatment/preventive options?
Feeling really disheartened and scared.
So here's my story: Recently (1 week ago) I developed Anisocoria (unequal pupils) and my right one was not reacting, as a result I was unable to focus near objects i.e. difficulty with reading/looking at the computer. Investigation for that led to me getting an MRI that showed some demyelinating lesions in the white matter. I'm assuming most of you probably have been in that position and know what that means.
Currently, I am in the work up process for a possible diagnosis of MS. My doctors are following my symptoms and scans to eventually get more evidence to rule it in or out. From what I have read I understand that could take years.
I have joined this support group so I can meet people in a similiar situation, be more informed and learn what/if I can do anything during this prediagnosis phase.
I am told that Anisocoria is not a common symptom in MS, however it does not mean it cannot happen. I am curious if anyone else has experienced that also?
Also, I'd really appreciate any advise on what can be done in the pre diagnosis phase in terms of treatment/preventive options?
Feeling really disheartened and scared.
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
I do want you to know that this is a great place to learn and to get moral support!
Best of luck!!!
I wish you the best! I agree with the research to a certain extent. After I started to think that I had MS, I started research and found way too many other diseases that presented with similar symptoms and scared myself silly. I scared myself so much that the MS diagnosis was almost a relief.
I'm glad that you found this site. Take care and keep up updated re your condition.
It's never gone away, I've had it for more than 2 years. It's not always extremely noticeable, sometimes it is, depends on the lighting. I don't think it effects my vision very much. I think my neuro disagrees.. not sure how she can disagree as they are my eyes, but whatever.
Good luck to you. Hang in there.