Multiple Sclerosis (MS) Support Group

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anyone else experience this on copaxone?

deleted_user
deleted_user
hello all. i have been on copaxone for a couple weeks now and I have notice I am super puffy. nothing has changed with eating habits probably eating healthier if anything and i am holding water like crazy. my rings are tight and my face is extra round. i dont know if this is a copaxone side effect or if anyone else has experienced this?? any confirmation or advice would be greatly greatly appreciated!
smathie2
smathie2
Have you done a round of steroids lately? Or is it nearing that time of the month?

I'm not on copaxone, but I am much more aware of water retention now. I try and drink 2L of water a day on top of what I drink normally. I keep a 1L nalgene bottle at work and sip water throughout my shift.

The more water I drink and the less salt I take in, the less bloating I have. I can gain over 10 lbs of just water weight depending on my eating habits and the time of the month.

It might be copaxone, but MS makes me question everything... but not everything is because of MS.
deleted_user
deleted_user
I gained a lot of weight on Copaxone. (About 12 pounds in just under 3 months and I ate less than normally). I had to quit because of scary tremors/shaking/chills that would last as long as an hour.
I hope copaxone will work better for you.
deleted_user
deleted_user
Oh... just wanted to add that weight gain is on their list of possible side effects.
deleted_user
deleted_user
Well if it is any consolation I have been on Copaxone for nearly 9 years and have gained over 30 lbs! Don't eat much as I don't have an appetite. Just puffy and feeling bloated and fluid filled. Doctors have NO answers and the Shared Solutions RN's have even fewer answers. Add to the weight gain, the depression, the lovely cellulite looking bumps all over my shooting sites and I am wondering if the "cure" is worse than the disease. Fortunately I am quite a bit older than you and cover up with jeans and a sweatshirt in the winter and t shirts and shorts in the summer but oh the bathing suit time! Trying to get my new neuro to wean me off the crap and maybe try LDN but after 9 years fear sets in (does it work or does it not work...) Good luck and hopefully your weight gain will only be temporary!
deleted_user
deleted_user
I was actually wondering if anyone else was experiencing this. I have been on copaxone for 11 months, and am putting weight on like crazy-and I am also not eating. The weight has been making me pretty depressed the last couple of weeks. Of course, the depression from the copaxone itself combined with this new depression makes me a walking bundle of joy! LOL. Thanks for making me feel like I was not te only one.
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