Does anyone else suffer from primary progressive MS. I read an entry that said sometimes they were completely normal and you wouldn't know that they were suffering from a horrible disease. I am one of the lucky 10% of MS patients that have Primary Progressive MS. I can't remember the last time I felt or walked or was able to see normally. That's nice when you are only 29 years old. My neurologist says that it is very unusual to be this young and have this form of MS.I have faith in his diagnosis, he is tops in the field of MS. He is the head of the MS clinic at the University of Washington. Am I all alone? I'm sure I'm not. Does anyone else around my age have Primary Progressive MS? It sucks and it is even worse when you feel like you have no one to relate to that is dealing with the same kinds of stuff constantly. Imagine your worse day replaying over and over. That is Primary Progressive MS.
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