Multiple Sclerosis (MS) Support Group
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Hi, I am as yet not 100% DX but am told that this seems to be the reason for my problems.
I really feel I am going nuts at times with some of the things I have been experiencing.
It started ages ago with randomly falling over for no reason. My memory is shot and now I get very embarrassed when in company because a lot of times I have trouble saying things or getting the words right.
I have had testing and have sensory nerve neuropathy in both legs from the knees down and yet a lot of the times they feel burning and other times cold.
Recently I have had the following and am just wondering if others have experienced any of these.
When drifting off to sleep several times I have had what feels like an electric shock going through my brain. The first time it happened it scared the heck out of me, now I don't let it bother me so much. Now the other night I was in bed and all I did was swallow some saliva and next thing I had this electric shock feeling go down both arms to my fingertips and up the front of my neck and completely over my face.
I have had an episode recently also where I suffered extreme pains going through the palm of my right hand and down to the tips of all fingers on that hand. This lasted a week roughly and now the ends of my fingers feel different.
I have trouble off and on swallowing, even liquid. I also, very embarrassingly have bladder incontinence and urgency and there is no infection or kidney problem.
I am so tired I can hardly get out of my own way and this will last for days on end.
Boy looks like I have written a novel. Does this add up as MS?
I really feel I am going nuts at times with some of the things I have been experiencing.
It started ages ago with randomly falling over for no reason. My memory is shot and now I get very embarrassed when in company because a lot of times I have trouble saying things or getting the words right.
I have had testing and have sensory nerve neuropathy in both legs from the knees down and yet a lot of the times they feel burning and other times cold.
Recently I have had the following and am just wondering if others have experienced any of these.
When drifting off to sleep several times I have had what feels like an electric shock going through my brain. The first time it happened it scared the heck out of me, now I don't let it bother me so much. Now the other night I was in bed and all I did was swallow some saliva and next thing I had this electric shock feeling go down both arms to my fingertips and up the front of my neck and completely over my face.
I have had an episode recently also where I suffered extreme pains going through the palm of my right hand and down to the tips of all fingers on that hand. This lasted a week roughly and now the ends of my fingers feel different.
I have trouble off and on swallowing, even liquid. I also, very embarrassingly have bladder incontinence and urgency and there is no infection or kidney problem.
I am so tired I can hardly get out of my own way and this will last for days on end.
Boy looks like I have written a novel. Does this add up as MS?
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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Has anyone tried these supplements? Do they give MGers more quality of life by improving memory and overall well being?Thanks!Barbel
Why haven't you been diagnosed with anything? How long have you been experiencing these things? I'm sorry you've been left hanging like this. It can take time....but it just doesn'y seem right to me.
I go back to my family Dr on Wed and will see what else he has to say and probably be referred to another specialist who might listen this time.
Oh, BTW I am in Australia and in the country and have to travel quite a distance for any specialist treatment.
When I pushed on these other symptons, which were not as many at the time, he just told me I was going through menopause.........arghhhhhhh
I would just like to know WHAT I am dealing with, I am not particularly bothered by a label but it would help to know the reason.
I am normally such an active person and live outside but now the sun and heat just take everything out of me and that has NEVER happened before.
I wish you luck. I understand the need for a diagnosis! We need to be able to identify so that we can learn and treat and go on with our lives. Living in Limbo is anxiety-producing. Let us know what you learn.
I'd lay out your symptoms and ask him/her what he'd/she'd do to determine what is wrong. It can be tough, I had 3 MRI's, unesscessary brain surgery and then 2 years later evoked potentials test and a Spinal Tap to arrive at a diagnosis of "probable MS".
Doctors can be egotistical enough without getting their back up by telling them their business but it doesn't hurt to tell a Neurologist what you suspect (along with all of your symptoms).
Before you start on this journey make sure you have good insurance and keep smiling. I was diagnosed 13 years ago and still no wheelchair (it isn't inevitable).
Larry