
Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.

deleted_user
Avonex is making me crazy! I am crying right now as I type...and for no aparent reason, other than Avonex is a crazy drug! I am so sick of switching medications, but I don't know what else to do. I get depression that I have never experienced before in my life, I get mad at everyone around me. I feel like I have lost control, not to mention the unbearable pain in my arm that makes me want to cut it off! I feel like I am starting to give up hope, the only comfort I get is from GOD, and I know that that should be enough, but I am sick of crying! What do I do??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I often wonder what life coulda been had I found LDN younger.
Best of Luck!
Michelle
I cringe when I see people on Avonex telling someone else something like "oh, just take FOUR advil's an hour before, and then FOUR MORE an hour after"
or something like that.
A Buzzer goes off bzzzzzzzzzzt sorry, TILT.
But that's just my opinion.
I refused all the CRABs when I was DX'd, they tried to play let's make a deal, too. I told them once the only one I'd remotely consider would be copaxone, but NOT every day. The MS nurse tried to bargain every other day "just as effective, they won't tell you that though" and then when I said NO, she tried a rebif schedule, ever other day. Ah, ok, so every 3rd day is OK.. thanks for that info. I don't trust any of them. I don't like the Angle. But that's another story.
If you're New to MS, and new to any of the treatments, I'd spend whatever energy I had in checking out LDN. When I was a lone voice it was tough, but there's now hundreds if not thousands on it all over the world for all sorts of diseases, some are even doing better than I am.
10/20 is the 3rd Annual Conference and it's booked solid; http://www.ldninfo.org has more info
If I didn't LIVE it myself, I'd be skeptical too. But I have 4 1/2 years of documented medical situations with various specialists that just can't deny the seeming effectiveness of my superbly orchestrating immune system (read my 10/2004 staph infection post in the mystory thread link above)
GOOD LUCK TO US ALL :)
I only share out of love of my life now, no financial interest all :)
it's http://www.larrygc.com/mystory
I just started it 3 weeks ago and have flu like side effects. Some of my MS symptoms feel like flu. so in deciding about drugs, i figured "hell, I already feel like crap and fluish, how much worse can this be.
My understanding is that it can take up to 6 months for these to settle down.
i have been told over and over that MS is an individual disease (like a finger print to a person). I think treatment has to be individualized to the person and works for that person.
In your particular case I would be back at the doctor's office ASAP
AND call the case manager with Avonex. let me know if you need the number.
Finally, i would try loading up with 2 advil and 2 tylenol before the shot and add 2 more advil 2 hours after the shot.
this cocktail is absolutely within therapeutic limits and tylenol and advil are NOT in the same class of medicines at all.
in fact 2 tylenol and 2 advil are a great headache cocktail when your head is (i call it) raging (migraine or tension).
good luck. hang in there!
lisa
LDN is Low Dose Naltrexone
You can also click on the LDN Treatments link on the main MS Community page
It's usually compounded into a capsule of 3.0 MG or 4.5 MG and you take one a day, after 9pm standard time, but before 3am
It helps orchestrate your immune system and is now being used for a wide range of AI type diseases... MS, fibro, lupus, altzheimers, cancers, fms, cfids, cfs, psoriasis, pd, als, pls, crohn's (actually healing some), autism and MORE
http://www.gazorpa.com is another good info site
LDN is being used around the world by people with AI diseases, it's being tested, examined, poked and prodded.
Bee stings don't work very long, we know that now.
LDN has people on it 9 years and under still doing as well.
LDN won't be Offered by docs.
If you go to a Restaurant, are you going to be offered Tap Water with Lemon or a bottle of wine?
LDN simply helps orchestrate ones immune system, that's it, very simple, almost homeopathic.
Nay sayers can say what they want, those who go on LDN, stay on LDN, and a vast majority find a life they never had before.
My life is Better than it's EVER been. I haven't even had a sniffle in the last 4+ years. Anything that tried to take hold disappeared within days.
Stuffy noses in the morning are gone within an hour.
And I have medical documentation from a KILLER staph infection that reversed and retreated with 2 doses of Levaquin. Unheard of in my podiatrists 23 year, at the time, practice. He had the antibiotic drip already ordered and was stumped.
LDN is the real deal, it's proved itself. It's keeping people with lots of diseases alive and functional. It's helping people with crohn's HEAL.
Dr. Jill Smith, Dr. J McCandless, Dr. Myra Gironi, Dr. Mir, all are doing testing and working with LDN for various diseases.
The PROBLEM? I'm no profit. Costs me $14.94 retail, no insurance claim. That's not keeping Pfizer, Teva, Shering Plough and others In Business.
good luck to you all... when God throws information in front of you, you choose to read more or just continue to suffer white coat syndrome.
no w/c for me, thanks. I was nearly in one forever, I'm nearly running now.