Multiple Sclerosis (MS) Support Group
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Hi - help.... just had another "discussion" or is it an "argument" with my husband...
I was dx in April. Went on Rebif in June. Never had symptoms of MS before this year, but through the summer had major issues with
heat/humidity tolerance, ups and downs with my moods, and it seems these past few weeks the fatigue has been really bad. I am totally exhausted by 1pm and I nap almost every day.
This is coming from a young mother who was 100-miles-an hour all day long every day of the year before this!
I guess I can't complain too much, because if fatigue is my major concern with my MS, I must be doing alright. Many of you have it far worse than I! But still, I guess its hard for all of us to accept change and things we have no control over...
My husband says that my problems and my quality of life has diminished since going on Rebif. I say my quality of life has
diminished since I was dx this spring.
SO - my question to you is... is it MS or is it Rebif?
Aren't heat intolerance and fatigue major symptoms of MS... and doesn't Rebif
help protect against major exacerbations but doesn't target the day to day symptoms of MS?
I told my husband that he just hasn't done the research that I have on both the disease and the drug. Sometimes I wonder if he thinks I am just being lazy as the laundry and the dishes pile up and I am taking a nap.
Well, ok, i vented... any advice would be appreciated.
I was dx in April. Went on Rebif in June. Never had symptoms of MS before this year, but through the summer had major issues with
heat/humidity tolerance, ups and downs with my moods, and it seems these past few weeks the fatigue has been really bad. I am totally exhausted by 1pm and I nap almost every day.
This is coming from a young mother who was 100-miles-an hour all day long every day of the year before this!
I guess I can't complain too much, because if fatigue is my major concern with my MS, I must be doing alright. Many of you have it far worse than I! But still, I guess its hard for all of us to accept change and things we have no control over...
My husband says that my problems and my quality of life has diminished since going on Rebif. I say my quality of life has
diminished since I was dx this spring.
SO - my question to you is... is it MS or is it Rebif?
Aren't heat intolerance and fatigue major symptoms of MS... and doesn't Rebif
help protect against major exacerbations but doesn't target the day to day symptoms of MS?
I told my husband that he just hasn't done the research that I have on both the disease and the drug. Sometimes I wonder if he thinks I am just being lazy as the laundry and the dishes pile up and I am taking a nap.
Well, ok, i vented... any advice would be appreciated.
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I can't stand ignorance and intolerance anymore. I need someone to be with me cause I am a good person.
I think the heat intolerance is one of the most common problems faced by MSers and there's nothing much we can do except try to keep cool.
My sister decided she is against my meds...all non narcotic and dr prescrobed...and is "sad" she has lost her sister. Sh has no attempted olook at my side of the fence while talking solloudly and so surely ...i nolonger spek to her..not something I advise, especially with a spouse. you can try to get him to understand but he may never. What you can do is work on notletting it get you down and not add toyour stress. You have MS it is going to effect you regardlessof meds, try not to doubt yourself....hugs
Dummies" book. Extremely helpful !! Nice Christmas present for him too!!!
I totally understand how you feel.
I definatly think it's the MS. Look up the side effects of Rebif and make a copy for him to look at. Then make a copy of the side effects of MS. Then it will be right there on paper for him to see!
Hope this helps!
God bless ya!
Darla
Personally, I can't take any of this toxic stuff--I just learned to live with my MS symptoms. I've had MS for 14 years this month, I have not been on Betaseron since 2003, and I'm not complaining as MS will not kill me.
I push myself so I live a nearly normal life. I just don't work and try not to stress myself. You will find your own pace and yes, MS for Dummies is a good suggestion for your husband. "Little by little" is the motto on my farm, and my partner understand when I tell him I need to rest. Everything that needs to be done will get done "little by little". xoxoxo Cj (Cindyjo)
good luck.