Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
HEY THERE...
I CAME ACROSS SOMETHING TODAY AS I WAS WORKING ON COMPLETING A PAPER FOR ONE OF MY ART HISTORY COURSES. I HAVE BEEN RESEARCHING ARTWORK THAT WAS DONE DURING THE 80'S AND AT A TIME WHEN AIDS WAS FIRST BECOMING A "TRUE EPIDEMIC."
ANYWAY, I FOUND THE FOLLOWING QUOTES ONE THE BOOKS AND I KEPT READING IT AND READING IT...AND THEN I STARTED TO CRY...ALTHOUGH I WAS DIAGNOSED ALMOST 11 YEARS AGO WITH MS, WHEN I WAS A MERE 21, I HAVE ALWAYS STRUGGLED WITH ADMITTING IT AND SPEAKING THE TERM MS...IN GENERAL, I AM A PRETTY STRONG WOMAN, BUT I LACK IN THE ABILITY TO ADMIT MY ILLNESS, EVEN MORE SO NOW THAT I AM PARTIALLY BLIND. SO, THESE WORDS THAT I READ TODAY HAVE GIVEN ME HOPE, AND A LITTL KICK IN MY BUTT...MAYBE THEY WILL SPEAK TO ANY OF YOU THAT MIGHT BE STRUGGLING WITH THE WORDS: MULTIPLE SCLEROSIS...
HERE THEY ARE:
FROM SUSAN SONTAG, "THE WAY WE LIVE NOW, 1986":
"TO SPEAK THE NAME IS A HEALTHY SIGN, A SIGN THAT YOU HAVE ACCEPTED WHAT YOU ARE, MORTAL, VULNERABLE, NOT IMMUNE, ULTIMATELY NOT AN EXCEPTION, IT IS A SIGN THAT YOU ARE READY, TRULY READY, TO FIGHT FOR YOUR LIFE."
--PEACE AND LOVE, EMMIE
I CAME ACROSS SOMETHING TODAY AS I WAS WORKING ON COMPLETING A PAPER FOR ONE OF MY ART HISTORY COURSES. I HAVE BEEN RESEARCHING ARTWORK THAT WAS DONE DURING THE 80'S AND AT A TIME WHEN AIDS WAS FIRST BECOMING A "TRUE EPIDEMIC."
ANYWAY, I FOUND THE FOLLOWING QUOTES ONE THE BOOKS AND I KEPT READING IT AND READING IT...AND THEN I STARTED TO CRY...ALTHOUGH I WAS DIAGNOSED ALMOST 11 YEARS AGO WITH MS, WHEN I WAS A MERE 21, I HAVE ALWAYS STRUGGLED WITH ADMITTING IT AND SPEAKING THE TERM MS...IN GENERAL, I AM A PRETTY STRONG WOMAN, BUT I LACK IN THE ABILITY TO ADMIT MY ILLNESS, EVEN MORE SO NOW THAT I AM PARTIALLY BLIND. SO, THESE WORDS THAT I READ TODAY HAVE GIVEN ME HOPE, AND A LITTL KICK IN MY BUTT...MAYBE THEY WILL SPEAK TO ANY OF YOU THAT MIGHT BE STRUGGLING WITH THE WORDS: MULTIPLE SCLEROSIS...
HERE THEY ARE:
FROM SUSAN SONTAG, "THE WAY WE LIVE NOW, 1986":
"TO SPEAK THE NAME IS A HEALTHY SIGN, A SIGN THAT YOU HAVE ACCEPTED WHAT YOU ARE, MORTAL, VULNERABLE, NOT IMMUNE, ULTIMATELY NOT AN EXCEPTION, IT IS A SIGN THAT YOU ARE READY, TRULY READY, TO FIGHT FOR YOUR LIFE."
--PEACE AND LOVE, EMMIE
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I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
I do struggle with the diagnosis, so I will have to just keep reading that over and over again until it embeds in my brain!
Thanks for sharing! It's beautiful!
~Deb
XO, EM
embrace what you have...and it does empower you...i like that...now t-shirts please..grin
hey we have them for the epilepsy side...rofl..a walking brain..heh heh heh...dont know where mine walked to but seriously..it is a brain with legs and feet walking..grin...
luv ya brat
heather
KISSES, EM
I think it is going to take me a while yet to accept this dx, but thank you for sharing the quote with us.
Stay as well as you can, hugs, Owlxxx
I have found the way for me to except it is definaelty to realise that I have to let go of fear and control.
I so far have been on an emotional journey with this and realised that before we feel fear we have to have thoughts. I try to control those thoughts by realising that I don;t have control over this life-only choices.
Best of luck to all on this journey too. It may take some time but eventually you will come to a place of serenity within your self.
XO,EM
Thanks Kenzy,I will keep this.
I find I come to the acceptance point , and then BOOM! I struggle with this emotional roller coaster all over again. This is a cycle I do not think will ever end for me....
I find I have no problem saying "MS" but "Multiple Sclerosis" gives me a problem...weird, eh?
Thanks again, I'll file this in my MS brain, to be used when needed.....
Hugs and Cheers and Merry Christmas!
Sharon
xoxoxo
NOW THAT'S ENLIGHTENMENT!
MS Princess