I just needed to let off a little steam, because I have no diagnosis, and I am very frustrated. I have been having so many symptoms that I thought were all related to lupus, but now it seems that they point more to MS. My mom had MS and passed away in 2003. It scares me, but at the same time, I really want to know what it is, so that I can get treated. My mom was in denial when she was diagnosed in 1991. She never had treatment until it was too late. The disease had progressed too far by that time, and little by little, she just went downhill until nothing was functioning right anymore, except her mind. It stayed sharp until the last moment. Anyhow, I do not want to take that route. I want to be in charge of whatever this STUPID thing is that I have. I just really need to know. Right now, for the last few days, I have just been itchy in random spots all over my legs. I could scratch until I bleed. My eyes hurt when I look sideways, I can't enjoy the nice weather outside, because it's too hot and sunny for me. I have been nauseated off and on all week. The other day I had this squeezing type of pain all the way around my waist are. I was crying for an hour. I just can't take much more. My appt. with neuro isn't until Sept. 5. I'm starting to wonder if I should just take a trip to the emergency room next time something major happens. I just don't know what to do anymore..... Thanks for listening everyone. Please feel free to add any comments about similar experiences, or questions, it would be helpful to me :) :) :)
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