I was reading one of the topic discussion and wanted to say some things on here about how I felt in relation to what MS is and not being diagnosised. I have worked for a very admirable durable medical equipment company for three years now. I have done alot of medical billing, customer service, and now all authorizations for all equipment for my company. We work very closely with the MS/ALS clinc with a very well known hospital in our eastern region. So knowing what MS is can be an understatement. I have seen and read all kinds of neurologists Letters of medical necessity. I see people with MS everyday. I see people with ALS everyday which the unabreviated full name is Amyotrophic Lateral Sclerosis. As known as Lou Gerigs disease. I see children with Cerebral Palsy, Spina Bifida, Alexanders disease, Quadriplegias, and many others. My point I want to state (sorry for writing a book) is that just because you are not satisfied with your doctor and go to the next is going to optimize the next Doctor with a diaginose. It does not work that way.Finding the right doctor to actually diagnosis you is really hard for alot of people. I have been tested for everything underneath the sun and nothing comes back POSITIVE!! I have not been properly diagnosised for MS yet b/c of DOCTORS!! We complain about our doctors because they cannot do their job. About 90% cannot. So to just state the baseline again, its not that we donot "know" what MS is. Its not that we cannot seek the correct "medical attention we need". Its that we can't be taken seriously and we are called CHA CHING!!! Money. Thats why I want to help as much as I can. If I can make a difference than I know I am one person who does care without wanting money in return. Don't get me wrong I am not trying to be ugly or snide. I am just saying how I believe and putting my knowledge that I know out there. If theres anyone with an opinion, please say how you feel. I think it will be interesting to see what people think.
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