
Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.

deleted_user
Would like to hear any positive things from people with ms who have used ldn. I seem to go back & forth week to week.
Change that to any input.
Lorna
Change that to any input.
Lorna

deleted_user
I WAS DX WITH MS OCT 2006.I STARTED TAKING LDN IN APRIL.I WENT FOR AN MRI IN OCT THIS YEAR SINCE I STARTED THE LDN NO MORE LESIONS AND NO EXACERBATIONS.I RECOMEND GOING ON IT I HAD NO SIDE EFFECTS ON IT.

LarryLDN
well, you know my story ; http://www.larrygc.com/mystory but I'm just one small voice getting smaller and smaller as more and more start taking LDN for everything else!

CASMIRA
okokokok......I am in very rare form without my LDN (currently without) so EXCUSE anything I will say that's out of the norm for me......for those who know me here....I have been without my LDN for 2 weeks now.....2 WEEKS!!!....I just started Copaxone in May of this year and then had a "reaction" from the Copaxone on Friday, July 13th this year and quit taking it (Copaxone) and then started having breathing probs from the MS soooo I ran for the injector and shot up the Copaxone and then started getting chest pains...complained to my dumb ass neuro about it and she said hmmmmm not aware of any probs for Copaxone causing chest pain...well did u read the drug insert dumb ass was my reply...YEAH I SAID IT.....and she just gave me a blank stare....SHE then stated we need another MRI....ok....still waiting on the call from her office to schedule BUT in the meantime I FOUND DS and started chatting with people and found out about LDN...went back to neuro....DUMB ASS (neuro) said that because "it isn't FDA approved I won't fill it"....well DUMB ASS if she had read that LDN is approved under high dosage that maybe just maybe she could've been a little bit more on the intelligent side....and say sure worth a try instead of flat out NO....WHAT LDN HAS DONE FOR ME SINCE COMMENCING IN NOVEMBER....given my LIFE BACK!!!!! I could walk, I could talk with a barely noticeable speech slur...I didn't have the headaches or usual aches and pains because LDN was doing SOMETHING AND THAT SOMETHING WAS FOR THE GOOD!!! I got the script from my primary physician....cool doc....he better not EVER retire either....and WOW....LDN is not a cure but it sure as hell feels like it oh spike...you didn't have anymore lesions...nothing "active"??? God Bless YA!!!! Darcie, wouldn't lie to you....get the script....it's the best thing that ever happened to me...that's why I am getting a 90 day supply next week...get that and it would be cheaper....much cheaper than 30 day supply!!!! Good Luck and God Bless and just remember it is NOT a cure but whatever it does it HELPS MS...look at the data on gazorpa.com and lowdosenaltrexone.org....go for it.....ok...I am going back way way back into my cave now!!!!! (I am biting these days without my LDN and I am worst than the class A B&^*tch but be back to normal in 10 days or sooooo...carpe diem!!!!!!!

deleted_user
i've been taking ldn for a couple of years now. I'm not looking for a miracle, just something to make me feel human again. It seems to work for me.

deleted_user
ok i keep seeing all these new things (or new to me anyway) on here...... what is LDN??? I've already asked about tybrasi or however it is you spell it and it doesn't sound like something i want to look into. so what's LDN???
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