
Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.

deleted_user
I talked to my neuro about LDN. He won't write a prescription because he says there is no evidence of its effectiveness. Any advice? Maria
Posts You May Be Interested In
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
-
I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
He also knew it wasn't a "rip-off" scheme.
I'd try your primary care doctor, it is really "out there" for a Neurologist to do it, while you primary care doc should be most concerned about weather it will hurt your or not.
Good-luck, Larry
1) As Maria said (and Im not trying to play the cynical evidence based medicine doc but here goes) there are NO published clinical trial on LDN and MS
2) There WAS a recent intriguing trial on LDN showing some results in patients with Crohns.
3) We know that the use of low doses of naltrexone for MS enjoys a worldwide following amongst MS patients and that there is overwhelming anecdotal evidence, that in low doses naltrexone not only prevents relapses in MS but also reduces the progression of the disease....but we need some hard data (which cant be tough to do as it exists for crohns and other illnesses)
4) It is proposed that naltrexone acts by reducing apoptosis (basically dying)of oligodendrocytes.
5) The medical community (of which I am a part) needs to study LDN and MS and publish those results...when we do Ill let you know
Dr O.
are there any bad side-effects to ldn?
tonytony10
So, ask him how he explains AUTISTIC CHILDREN being helped:
1. they don't know they're taking LDN, or could even pronounce it if they did
2. LDN is applied while they're SLEEPING, so they don't even know they're getting anything
3. it's applied transdermally so they're not even involved in the process
Can't be a placebo when it comes to chemical reactions in patients who aren't even aware they have a problem, much less medicine to try to help them.
Actually, I think you have a better chance of getting your PCP as opposed to a Neurologist to prescribe it as another Doctor won't be hung up on effectiveness for MS.
You might look up Its effectiveness for other Autoimmune diseases like Chrones Disease.
Refer you PCP to www.lowdosenaltrexone.org. Maybe he/she will also adopt the attitude of "well it can't hurt you" and for the money involved it certainly isn't a scam.
Good-luck.
Larry