Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
10 Commandments (Suggestions) for care receivers
1. Always say please and thank you
2. Do what you can for yourself as long as you are able
3. Don't be true proud to ask for help when you need it.
4. Don't whine and complain.
5. Let your caregiver be sick too; sympathize, don't one up.
6. Become informed about your illness
7. Don't think the world revolves around you.
8. Make it your business to stay as healthy as you can.
9. Allow your caregiver guiltfree time away from you.
10. Let your caregiver know how much you love/ appreciate him or her.
Please feel free to add more.
1. Always say please and thank you
2. Do what you can for yourself as long as you are able
3. Don't be true proud to ask for help when you need it.
4. Don't whine and complain.
5. Let your caregiver be sick too; sympathize, don't one up.
6. Become informed about your illness
7. Don't think the world revolves around you.
8. Make it your business to stay as healthy as you can.
9. Allow your caregiver guiltfree time away from you.
10. Let your caregiver know how much you love/ appreciate him or her.
Please feel free to add more.
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
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Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...
The only thing I would add would be to remember life doesn't go in to a holding pattern for our caregiver just because we have MS. Even if we can't participate with our caregiver, take a real interest in their interests, what gives them joy. Don't make them feel guilty for things you can't join in with any longer. They have enough on their shoulders without having our guilt being put on their shoulders.
i dont cook much anymore...i dont have feeling in my hands..smile..you know when you take the lid off the roast pan without oven mitts and it does not bother you..it is time to back away from the oven...rofl...but at least three times a week..i make a point of getting dinner ready....with zacks help usually of course..but we manage..grin...it takes the weight off garrys shoulders..and gives him a break..smile..it is not much..but it helps and gives him space as well....
there is always something we can do..albit small or sometimes large...that we have given up becuase it is easier that way...but in the same aspect ...if we give it up becuase it is easier...we are also giving up our own independance....and for that..we have no one to blame but ourselves....it may take longer to do something..it may take more effort....but is it not worth it??...for both the care givers and ourselves??
luv
heather