Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
10 Commandments (Suggestions) for care receivers
1. Always say please and thank you
2. Do what you can for yourself as long as you are able
3. Don't be true proud to ask for help when you need it.
4. Don't whine and complain.
5. Let your caregiver be sick too; sympathize, don't one up.
6. Become informed about your illness
7. Don't think the world revolves around you.
8. Make it your business to stay as healthy as you can.
9. Allow your caregiver guiltfree time away from you.
10. Let your caregiver know how much you love/ appreciate him or her.
Please feel free to add more.
1. Always say please and thank you
2. Do what you can for yourself as long as you are able
3. Don't be true proud to ask for help when you need it.
4. Don't whine and complain.
5. Let your caregiver be sick too; sympathize, don't one up.
6. Become informed about your illness
7. Don't think the world revolves around you.
8. Make it your business to stay as healthy as you can.
9. Allow your caregiver guiltfree time away from you.
10. Let your caregiver know how much you love/ appreciate him or her.
Please feel free to add more.
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I was diagnosed with Temporal Lobe Epilepsy a couple of days ago. Apparently the Deja vu and nausea episodes I have been having for the last 7 years or so are actually seizures. Thankfully, because I have only ever had focal aware seizures I am allowed to keep my licence. However I am struggling to come to terms with the diagnosis. It doesn't really seem real. I'm interested to know how others...
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I was diagnosed with Epilepsy when I was 10. I am currently 20 years old am at a point in my life where I am starting to lose hope on having my seizures controlled because throughout my life I have tried multiple medications but the ones that worked my body used to and then would stop. The longest Ive been free of them was only 5 months. Im trying to find something in my life truly worth living...
The only thing I would add would be to remember life doesn't go in to a holding pattern for our caregiver just because we have MS. Even if we can't participate with our caregiver, take a real interest in their interests, what gives them joy. Don't make them feel guilty for things you can't join in with any longer. They have enough on their shoulders without having our guilt being put on their shoulders.
i dont cook much anymore...i dont have feeling in my hands..smile..you know when you take the lid off the roast pan without oven mitts and it does not bother you..it is time to back away from the oven...rofl...but at least three times a week..i make a point of getting dinner ready....with zacks help usually of course..but we manage..grin...it takes the weight off garrys shoulders..and gives him a break..smile..it is not much..but it helps and gives him space as well....
there is always something we can do..albit small or sometimes large...that we have given up becuase it is easier that way...but in the same aspect ...if we give it up becuase it is easier...we are also giving up our own independance....and for that..we have no one to blame but ourselves....it may take longer to do something..it may take more effort....but is it not worth it??...for both the care givers and ourselves??
luv
heather