We all ask the question why? I needed to know that if genetics played a part in why our son died I needed to know so I could help our future children. Well, good news is that I am Rh- and both my husband and I are carriers of a genetic disease called Thalassemia. Every child we have as a 25% chance of being affected by being a carrier,having a mild case, intermediate, or major case. It turns out that the two things combined (being Rh- and Thalassemia Major) is what caused our angels death. The two combined cause severe swelling on parts of the body and leads to heart failure. Our angel Isaac, had swelling on his brain and his heart stopped. Now we have answers, it helps but it is so sad to knwo that our want to have him, putting our genes together to create him caused him these abnormalities. Atleast we know. It hurts. I feel as though I killed him because I made him with faulty genes. It is good to know but, bad because of me. Any other children run a 25% chance of repeat. This means I might have to go through this again!? Help me! A part of me would go through this again in a heartbeat to try for more children but the heartbreak of losing more children to this disease sounds irresponsible to put them through the suffering. Could I get some advice?
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