Migraine Headaches Support Group
Migraine is a neurological disease, of which the most common symptom is an intense and disabling episodic headache. Migraine headaches are usually characterized by severe pain on one or both sides of the head and are often accompanied by photophobia (hypersensitivity to light), phonophobia (hypersensitivity to sound) and nausea.
That's just how I feel. I am sick of my doctor. She is being "wishy-washy" and basically she seems sick of me too.
Does anybody else ever get this feeling about their own doctors?
There were some things that happened this week where she indicated that logistically she couldn't keep up with my treatments. Yes she actually used the word "logistically".
I have had a very bad month and I have been a high maint. pt. but I am still in the military and I have to go to the base clinic for treatment during "regular working hours" (8-4 M-F). So I have been there a lot and she has been getting heat from some of the other doctors and she basically told me not to come back there anymore, no matter how much I am suffering. I am supposed to take meds at home to stop my intractable pain (that is finally subsiding after almost a month). She told me to take anywhere between 40-70 mg of dilaudid to avoid going to the clinic for treatment. I told her that there was no way that I would ever take the much at home by myself. NO WAY! Then she said she wanted to hospitalize me for "drug detox"....not for the intractable headache that last week she said was thinking of doing. Talk about contradicting herself! I have not and will not take that much medication at home for my migraines or any other pain on my own at home. That does lead to further drug dependence. The fact is that she has NEVER tried anything else other than narcotics for my intractable pain. She said that some of the other suggestions from neurologists that she could not try at the clinic and I would need to be under a neuro's care to try in a hospital. We had never tried any of those suggestions. I tried bringing up magnesium and she did not look into it. I even tried DHE one last time, that I already posted about. Last week my doctor tried a one 3 day round of dexamethasone, recommended by my neurologist that I BEGGED her to call for suggestions on how to treat my pain. I thought we were going to try another round of the dexamethasone but she did not feel comfortable doing that. So now I am not supposed to show up for any more treatment in the clinic, it is getting too hard to keep helping me. Today I needed an unusually large dose of dilaudid to get the pain down, but yesterday I needed a low dose and the pain was almost gone. Yes, it came back but I could control it with minimal drugs last evening. However this morning it was out of control again. Then we finally got the pain. This evening, I have only my "normal" head and other pains...... the kind I live with and tolerate well on a normal basis....the kind I need my "normal" meds for.....
Anyway, I am just frustrated.
Does anybody else ever get this feeling about their own doctors?
There were some things that happened this week where she indicated that logistically she couldn't keep up with my treatments. Yes she actually used the word "logistically".
I have had a very bad month and I have been a high maint. pt. but I am still in the military and I have to go to the base clinic for treatment during "regular working hours" (8-4 M-F). So I have been there a lot and she has been getting heat from some of the other doctors and she basically told me not to come back there anymore, no matter how much I am suffering. I am supposed to take meds at home to stop my intractable pain (that is finally subsiding after almost a month). She told me to take anywhere between 40-70 mg of dilaudid to avoid going to the clinic for treatment. I told her that there was no way that I would ever take the much at home by myself. NO WAY! Then she said she wanted to hospitalize me for "drug detox"....not for the intractable headache that last week she said was thinking of doing. Talk about contradicting herself! I have not and will not take that much medication at home for my migraines or any other pain on my own at home. That does lead to further drug dependence. The fact is that she has NEVER tried anything else other than narcotics for my intractable pain. She said that some of the other suggestions from neurologists that she could not try at the clinic and I would need to be under a neuro's care to try in a hospital. We had never tried any of those suggestions. I tried bringing up magnesium and she did not look into it. I even tried DHE one last time, that I already posted about. Last week my doctor tried a one 3 day round of dexamethasone, recommended by my neurologist that I BEGGED her to call for suggestions on how to treat my pain. I thought we were going to try another round of the dexamethasone but she did not feel comfortable doing that. So now I am not supposed to show up for any more treatment in the clinic, it is getting too hard to keep helping me. Today I needed an unusually large dose of dilaudid to get the pain down, but yesterday I needed a low dose and the pain was almost gone. Yes, it came back but I could control it with minimal drugs last evening. However this morning it was out of control again. Then we finally got the pain. This evening, I have only my "normal" head and other pains...... the kind I live with and tolerate well on a normal basis....the kind I need my "normal" meds for.....
Anyway, I am just frustrated.
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
In the meantime - keep fighting the good fight. And you make sure it is put in your files that you are against the use of maintaining such doses of meds, and have been consistent in trying to get them to use other methods. (Really - make sure, because it all gets blamed on the patient later.)
Like yesterday, I was in total shock that the doctor was even suggesting that I take that much medication at home. She changed her tune eventually before I left, but still basically told me not to come back.
Typical military, they break you but when they don't know how to fix you they just shove you out the door. I am disappointed that my doctor got to this point...I did think that she was different.