Results: helpful in controlling my migraines when paired with other meds.

Side-effects. Slight loss of appetite. Was able to take up to 400mg without problem.

I just started a week ago...so far I have a better appetite than I did with Topamax. Too soon to say if it's keeping the migraines away. I've had some uncomfortable numbness/tingling in my left hand and forearm at night. I'd like to hear what other meds "Celtic" poster took with it...?

Effexor.

(which carries its own side-effects, and discontinuation syndrome is a bitch)

We're trying to get them back up to levels they were at when they were working well now, and added in Lyrica. Hoping to shake some trees down.

I was on 150mg Effexor and 400mg Zonegran that first round.

I have also had Nortriptyline work for me, by itself, for about a year and a half, but then it stopped. That happens to people. Epileptics have to change meds too. It ain't just us.

what mg did you guys start out at when you switched? i asked to switched and my dr reluctantly gave me an rx for it (after originally refusing to give it to me) and started me at 100mg a day for 2 weeks and then 200 mg a day after that. i know someone else on it who is only on 25mg a day to start. isnt that kinda high?

Tara- Your doctor has started you on the same exact dosage approach as mine: 100 mg for first 2 weeks, then move up to 200 mg. The jump to 200 is because it's a capsule, and it's in 100 mg increments. Your friend that's taking 25 mg is probably on TOPAMAX- a similar antiseizure drug, but with entirely different mg. I was on 25 mg of Topamax, then moved up to 50 mg, but after a week and a half was too sick on it, which is why I'm now trying Zonegran instead. I don't think Zonegran even comes in a dose as low as 25 mg- and I'm sure that 100 mg to start is fairly conservative, NOT a super high dose, so don't worry!

Has anyone experienced severe brain fog or word finding issues with Zonegran? Does it go away with time? I see it's similar to Topamax and when I was on Topamax, I couldn't add 2+2 half the time.

Thanks! :)

Eliza- i have been on zonegran since the end of october and i have noticed the brain fogs. sometimes i have difficulty thinking of words to say or thinking of what i mean. other days i think the meds make me feel kind of out of it.

it has helped with my migraines- thankfully- but i think i might have to up my dose. i am on 200 mg a day and am starting to get more frequent headaches and migraines again. he told me if i needed to up my dosage but im scared that im going to start forgetting more or start feeling too out of it.

I've been on zonisamide, generic for zonegran for several months now and just had to increase dosage from 100 mg to 200 mg per day. I have noticed the brain fog, but that's been true for me with each migraine med I've tried. It was helping with my cluster migraines, but as I began to have more frequent headaches, Dr increased dosage rather than switch to another drug - I've been on so many diff ones already.
Good luck & God bless,
Stacie

I just started on this drug . I am being waned off the Tegretol. So far this drug is better than Topomax , but it is really too early to tell. I will give it another 2 weeks. I am just glad to get off the tegretol.