Migraine Headaches Support Group
Migraine is a neurological disease, of which the most common symptom is an intense and disabling episodic headache. Migraine headaches are usually characterized by severe pain on one or both sides of the head and are often accompanied by photophobia (hypersensitivity to light), phonophobia (hypersensitivity to sound) and nausea.
Hi, I'm so glad I have found this site although given how many people suffer from migraines I'm suprised there are not more support groups. When you have this condition you really suffer alone.
If you read my profile you'll note I used to get migraines as a child & now my 10 year old daughter seems to be having them too. I'm not convinced it is migraine as yet but all the signs & symptoms seem to be there. I took her to the hospital twice last week & they refused to admit her when her symtoms went away. I felt she should have had some tests & be kept in for observation but because we are what is termed here "Public Patients" she was tossed out & I was given no guide what to do or what medication to give if the symptoms returned. They ruled out migraine because she complained of servre back pain with the headache & because they had never come across that being a symptom of migraine this possibility was dismissed. I was told to take her to a GP in the morning & they wiped their hands of her, leaving me feeling scared for her & very angry & resentful.
The Doctor I took her to made the tentitive diagnosis of migraine. She said my baby had all the symptoms & yes back pain & inability to move limbs were amongst them. Although she was sympathetic her attitude was "find what drugs work for your daughter. There is nothing else to be done." I insisted on a referral to a childrens hospital but she the appointment isn't until early May so the next day went to another doctor who agreed her symptoms could be migraine & also went along with my plans to give my daughter every test possible so we could rule out anything else. Although I found the first doctor competent I wanted someone more proactive.
I feel so lost. And guilty, I know migraines are genetic & I gave her the gene. I think I could cope better if it was only once in a while but it hasn't let up since last Wendsday. Mine used to happen about once or twice a month & for 24 hours. After reading some posts from people who suffer from them pretty much constantly I was reassured in a way but also terrified for my girl. This is insane, how long is this going to go for & how is she going to live a normal life? I can't keep giving her pain killers. It can't be healthy for her but I don't want her suffering through the pain like I did. There isn't much vomiting thank goodness or managing the symptoms would be so much harder.
If anyone has anything to share about children with migraine I'd be very grateful.
If you read my profile you'll note I used to get migraines as a child & now my 10 year old daughter seems to be having them too. I'm not convinced it is migraine as yet but all the signs & symptoms seem to be there. I took her to the hospital twice last week & they refused to admit her when her symtoms went away. I felt she should have had some tests & be kept in for observation but because we are what is termed here "Public Patients" she was tossed out & I was given no guide what to do or what medication to give if the symptoms returned. They ruled out migraine because she complained of servre back pain with the headache & because they had never come across that being a symptom of migraine this possibility was dismissed. I was told to take her to a GP in the morning & they wiped their hands of her, leaving me feeling scared for her & very angry & resentful.
The Doctor I took her to made the tentitive diagnosis of migraine. She said my baby had all the symptoms & yes back pain & inability to move limbs were amongst them. Although she was sympathetic her attitude was "find what drugs work for your daughter. There is nothing else to be done." I insisted on a referral to a childrens hospital but she the appointment isn't until early May so the next day went to another doctor who agreed her symptoms could be migraine & also went along with my plans to give my daughter every test possible so we could rule out anything else. Although I found the first doctor competent I wanted someone more proactive.
I feel so lost. And guilty, I know migraines are genetic & I gave her the gene. I think I could cope better if it was only once in a while but it hasn't let up since last Wendsday. Mine used to happen about once or twice a month & for 24 hours. After reading some posts from people who suffer from them pretty much constantly I was reassured in a way but also terrified for my girl. This is insane, how long is this going to go for & how is she going to live a normal life? I can't keep giving her pain killers. It can't be healthy for her but I don't want her suffering through the pain like I did. There isn't much vomiting thank goodness or managing the symptoms would be so much harder.
If anyone has anything to share about children with migraine I'd be very grateful.
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I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Has anyone had this done? Does it work ? What other problems do u get?
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
~bella
They have checked for tumors, PTC (which I suffer from), anything abnormal with her brain activity, with no such luck as a reason to why she's having them. She's been to 3 different neurologists with no answers.
I am soo sorry your daughter is having migraines so early. I have them also and they are not fun! Good luck
Second, my daughter (interestingly the only one amongst my 4 kids) gets headaches. So far, 1 Advil works and since she's almost 8 she can take pills. They are not migraines but headaches. But as a child, I had headaches too, and only later in life, about 18, did they mature into full blown migraines.
There's so little research I presume about what meds work for kids with migraines. But maybe regular pain killers like Motrin for kids do make a difference? I am glad you sought more advice.
I understand how difficult it is to have your child suffer with migraine. The two youngest of my four children have migraine syndrome. My 15 year old daughter suffers from headaches and my 17 year old son suffers from a very rare form called abdominal migraine. The symptoms are nausea, vomiting, diarrhea, and abdominal pain but no headache. It is migraine because the brain is causing the symptoms.
My daughter's headaches were becoming so frequent that she has been put on a daily dose of Elavil and that seems to be working quite well.
I spent the day today in the ER with my son. His abdominal migraines are so severe now that he missed 10 school days last month. He had one migraine that lasted for eight days, he was migraine free for only 4 days and today was the second day of the newest one. We have a new neurologist who agreed to try an IV drug treatment to try to arrest the escalating frequency and severity. He feels better now and I can only hope that tomorrow he will get to go to school.
It is hard to see our kids suffer. Just keep pursuing treatments that work and love her through it. You are her #1 support network.
Good luck with your endeavors.I feel for you.