Meniere's Disease Support Group

Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.

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Valtrex

Has anyone ever heard of using Valtrex for Meniere's Disease ? My newest doctor put me on this medication last week. Prior to that I was as if I was in a rowboat all day long. It has stopped the floating on water sensation. He wants me to stop taking all of my medications. So far one week later I feel GREAT ! I am just afraid of getting a bad VERTIGO attack now.

Replies

deleted_user
deleted_user

My son was diagnosed with an ear problem possibly Meniere's. His attacks were violent and debilitating causing him to lose work for days. He underwent treatment for several years with prednisone and various other forms of treatment that did no good. His ENT prescribed Valtrex. One Month's worth. That was two years ago. He has not had an attack since. The problem is a virus related to the herpes zoster virus, that is shingles and chicken pox. New discoveries are being made constantly.
SonicSue
SonicSue

wow,,,thats great!
why havent i heard of this?...hmmmm
deleted_user
deleted_user

I have an appt. with another specialist for the inner ear on oct. 13th. I will definitely ask her about this and post what she has to say.
deleted_user
deleted_user

Now I am on my 3 week of using Valtrex. The doctor even said I could have coffee and salt in moderation ! It feels like I'm getting my life back. I have been on Diability from work sine the 1st of July. The doctor said he would write a note for me to go back to work after my appointment on the 21st of October. This is my third Specialist. He seems to go the complete opposite of everyone else. So far so good !
deleted_user
deleted_user

That is awesome!! Congratulations and I hope things continue to be great for you. Thanks for sharing your experience.
deleted_user
deleted_user

I had an appt. with a new specialist and she is having me have blood work done to see if I am carrying the herpes virus. If so, she will prescribe the valtrex. It takes 1 -2 weeks for the results of the blood work to come in.
calady50
calady50

It just stuns me as I've read that that's the first thing doctors should test for and yet even the one I saw recently who's supposedly a "specialist" said I didnt' need one! DUH!! The doctors need to start taking our symptoms more seriously in the beginning to save our hearing!
John's of Ohio regimen even mentions this and prescribes something natural to take for it!
deleted_user
deleted_user

I agree. The doctors never brought it up and it was me that brought Valtrex up at my recent appt. Why a doctor would refuse to do the test on you is beyond me. It is no money out of their pocket.
deleted_user
deleted_user

It's becoming common knowledge that Meniere's is caused by a viral infection and can be cured in 85%~90% of cases by taking Valtrex 1000mg three times a day or Zovirex 800mg five times a day for 4~6 weeks. These drugs are not even mentioned by most ENTs could lead many a reader to consider drastic, ineffective and irreversible surgical management which is still being pushed bymany lagging doctors. Sources above:

"Effectiveness of Acyclovir on Meniere's Syndrome III Observation of Clinical Symptoms in 301 cases," Mitsuo Shichinohe, M.D., Ph.D., The Sapporo Medical Journal, Vol. 68, No. 4-6, Cases of 301 MD patients treated with antiviral meds The results were: In 82.5% of cases diagnosed as Meniere's Disease, 85% of cases diagnosed as Meniere's Syndrome, and 89.1% of cases diagnosed as vestibular dysfunction, vertigo disappeared, and tinnitus and hearing were improved.

Department of Otolaryngology-Head and Neck Surgery, University of Massachusetts Medical School,
Morphological and clinical evidence supports a viral neuropathy in Mnire's disease (MD). Quantitative examination with transmission electron microscopy of vestibular ganglion cells excised from a patient with MD revealed viral particles enclosed in transport vesicles. Antiviral treatment controlled vertigo in 32 of 35 patients with MD (91%). PMID: 19142031 [PubMed - indexed for MEDLINE]
deleted_user
deleted_user

I have been on Valtrex for 10 days and the fullness of my right hear has gone and I GOT MY HEARING BACK!!! I am hoping that it stays that way. The doctor also gave me a week's worth of the prednisone, but I didn't get the hearing back until about the 8th day. Also the sensativity is gone! My perscription will be up in a few days though and I will see if my doctor will give me more.
deleted_user
deleted_user

i have been on the John of Ohio regimen for 6 months with some very good results. i am considering Valtrex for more help. I am HSV2 posiitve. Can you tell me what dosage you are taking? very curious! thanks!
deleted_user
deleted_user

I am also on the JOH regimen for 6 months, but it does not really help me.

I took the Valtrex dosage recommended by my Doctor which was

3X1g for 21 days
2x1g for 21 days
1x1g for 62 days

other doctors recommend as low as 1x1g for 30 days

suggest you consult with your MD for details

Sirlanc
deleted_user
deleted_user

I picked up some L-Lysine after reading the John's of Ohio site, and I've been taking it for about three weeks.

The 'full' feeling in my left ear has subsided a lot. But ti still rings, and I still get wobbly moments. I'm also on a low dose diuretic.

I use a compounding pharmacist, I will be consulting her to add some of the other things one at a time. I have CFS, and if I try them all at once, I won't know if one or any of them is causing good, or a problem. So far no problem with the L-Lysine.
deleted_user
deleted_user

My husband has started on Valtrex and I was hoping I could get some info about it from someone who has tried it. Our doctor is not sure what the dosage or the duration of the medication should be. Is there anyone who has taken it and can offer any guidance? Also, anyone who has used it, how did it start working? How long did it take? What changes did you experience? Thanks!
deleted_user
deleted_user

From what I've read it seems Valtrex is most effective if taken immediately after symptoms appear but I'm intersted if it has helped anyone long after your symptoms began????

For those who respond....has your hearing improved? How much was prescribed and for how long??

Thanks,
Barry