
Meniere's Disease Support Group
Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.

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So, my ENT sent me to a specialists at Dartmouth Hospital to talk about injections in my left ear. After see this new doctor he seems to think my symptoms are very atypical for Meniere's and doesn't think surgery is the way to go, right now. I agree. So, he's experimenting on me instead. I started a high dose of steroids and been on them for 10 days now, 60mg a day. I have to go in for another hearing test on Friday to see if my hearing has improved and then I start tapering off the steroids. When I am completely off the steroids I will have another hearing test done and head back to the Dartmouth Doc to see what he thinks of it all.
I am not sure what to think of it all. I hate being on the steroids. After 10 days I am starting to feel the side effects. My face feels swollen and I have strange highs and lows in my energy. For example I was making bread at 1:30am because I was so full of energy the other day. (really not like me). I just wish someone would tell me a straight answer or not. Do I have Meniere's or is this something else?
Guess I am just going to have to ride this ride out and see where it takes me. Anyone else been down this road too? Anyone else prescribed steroids for Meniere's?
I am not sure what to think of it all. I hate being on the steroids. After 10 days I am starting to feel the side effects. My face feels swollen and I have strange highs and lows in my energy. For example I was making bread at 1:30am because I was so full of energy the other day. (really not like me). I just wish someone would tell me a straight answer or not. Do I have Meniere's or is this something else?
Guess I am just going to have to ride this ride out and see where it takes me. Anyone else been down this road too? Anyone else prescribed steroids for Meniere's?
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just wan't to say that i to had steroid injection in my ear the first time it lasted for two mounts went back and had another set of three injection into my ear and it has stopped me from having vertigo attacks for 6 mounts and counting. tried taking steroids by mouth but that never helped. talk to your dr. about the steroid injection . peggy64
Thanks for all your responses. Nice to know I am not alone. I am sorry your all going through this too. Sometimes people and doctors make me feel like I am crazy or making things up. It nice to know I am not the only one dealing with these issues.
Voltaire64: I think my dr is leaning to Autoimmune Ear Disorder or some other Autoimmune disorder. I am also nervous about injections at this point because it can cause more hearing loss. The dizziness sucks but I have been able to at least control in with meds to only be down for 1/2 to an hour once a week, instead of my 8-24+ hr attacks. At this point I am more worried about my hearing loss.
I am off prednisone now and going for another hearing test tomorrow and back to the dr on the 13th. So we'll see what he says. I did notice a difference on the steroids after 14 days or so. My brain fog seemed to lift and felt like my hearing got better. (Although my hearing test on day 11 stayed the same- well actually went down 10db in two tones. But they said that could just be the test). I also only had one day that I felt off balance/dizzy on the meds. Now that I tapered off the steroids the fullness is back and starting to feel foggy/slow again. Not sure what the dr is going to say. I really don't want to be on steroids long term. I am just hoping for diagnoses. I am so tired of not know what's going on and the back and forth. I've been down this road with my Ulcerated Colitis and it took 6 yrs, many doctors, and many wrong diagnoses before be properly diagnosed. I feel like I am heading down that road again. Some days I am not sure if I can handle it all again.
If by steriods you mean Prednisone, then I totally agree with you. I did not go through the ear injection. Took Prednisone orally, 60 mg a day, gradually tapering off after two weeks. It was pure, unobliterated hell. That drug needs to be outlawed. It has been 10 months since I got off of Prednisone and I am just now starting to sleep normally again. I was very, very sick and very suicidal while on the drug. Oh yes, it didn't help any, either.
Sunnyblsd