Meniere's Disease Support Group

Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.

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/ Meniere's Disease Support Group

John of Ohio's regimen

deleted_user
deleted_user
I hope any of you suffering from Meniere's will look up John of Ohio's regimen by Googling: Meniere's John of Ohio. In spring of 2006 I started in with daily dizziness, fullness in the ear, bad tinnitus. I was losing work days, couldn't drive, had to stay in bed. I tried specialists, alternative therapies and nothing helped. Then I chanced upon this regimen developed by a fellow Meniere's sufferer and since January I have had no dizziness, not one recurring symptom except for the ongoing tinnutus , which I have learned to live with. I urge you to take a look, read through the regimen and hopefully it will be something you will try and I hope it works as well for you as it has for me. My heart goes out to anyone who has to suffer through this disease. I feel this will be a special Thanksgiving holiday for me since I am enjoying good health. I wish the same for you.
Carol
deleted_user
deleted_user
I looked it up, it sounds promising. Can you get all of these products here in the states? If not, are the products safe from another country? I worry about that a little. But would sure love to give it a try if my diagnosis comes back s menieres. I will find out next week.
deleted_user
deleted_user
John actually gives the names of the best sources for these products and suggestions for alternative sources. I have followed his listed sources and have ordered everything online from the US. I hope this works for you if the diagnosis is Meniere's.

Carol
deleted_user
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I think I might try it. I am a bit nurvous because its pretty intimidating the amount of supplements you have to take, I hate taking pills anyway and I know how big vitamins (even cut in half) can be, LOL...but if they can offer reliefe that my doctors can't, well then I would try anything. Thank you very much for you suggestion.
deleted_user
deleted_user
Hi Carol. Did you do the entire regimen or only the most important one as described?
deleted_user
deleted_user
Rod, Hi.

I've been taking the entire regimen for over a year now and in that time I've had one episode, which wasn't too bad. I did write to John and he said that if the regimen is helping in the first few months, then it's for you; if not, it may not be the answer you're looking for. I will add that I had no side effects whatsoever from any of the pills he lists.

Good luck. I sure hope it helps you. Let me know.

My best to you, Rod.
Carol
deleted_user
deleted_user
Do you also follow other therapies such as reduced sodium diet, diuretics, etc?
deleted_user
deleted_user
I do watch salt intake, stopped drinking caffeine, eliminated dairy for the most part, and avoid aspartame which was a big trigger for me. My tinnitus has gotten a bit worse over the years, but I think that's often the case. I 'm not dizzy anymore and I don't have days of vertigo, so I'm pretty much back to normal. I'm learning to manage the tinntitus and when I'm busy I often don't notice it. I find the weather affects it alot too. I haven't used a diuretic but am curious.Do you use one? Does it help?
Carol
deleted_user
deleted_user
I've been on a diuretic for about 9 months now. It seems to work some, but I still have days where I'm nearly stone deaf in my left ear and some pressure. I have some vertigo, but it does not seem nearly as severe as in some of the stories that I have read. They doubled the dosage in Jan, but it has only helpled slightly. It is called Maxide. The ENT is talking about changing me to another one that of course has more side effects. I'm not sure if I want to go that route. The problem is I haven't been able to narrow down a trigger. A high sodium meal is definitely a trigger. But I'm taking in most days
deleted_user
deleted_user
Carol,
When you started the regimen, did you take one supplement per week as he suggests or did you just go for it ? I have all the supplements now and am ready to start.
deleted_user
deleted_user
For Karenanneb: To tell you the truth I can't remember how I started- probably as he described since I would be more cautious than hasty. I'm still taking it, having started in January 2007. A few months ago I added Red Yeast Rice plus CoQ-10 to help control cholesterol and it seems to have helped stabilize my tinnitus. This isn't scientific, just my own experience.I hope the regimen helps you. Every time I've had a question and emailed John, he has responded quickly.I'm very grateful to him because my life is totally normal now and except for the slight tinnitus I have had no other symptoms for a year and a half. Hope you are helped too!
deleted_user
deleted_user
Carol,

Thanks so much for your quick response and well wishes. You and John have given me new hope!
I will keep you posted.
Karen
deleted_user
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My husband is taking the first three and he hasn't had any problems since he stated about two months ago. He used to be stuck in bed for weeks because the dizziness was so bad but now all he does is avoid caffeine and he makes sure he gets enough sleep. I really recommend trying it.
deleted_user
deleted_user
I am finally taking all supplements listed and am doing OK so far. I still have the lightheaded feeling and sometimes dizzy but John states that it can take a few months or more. I started about two weeks ago and added a new supplement every 2-3 days with no issues.
deleted_user
deleted_user
Karen, It makes me so happy to know things are going well so far. It may take some time, as John says, for everything to kick in. I've even stated doing yoga again with gentle inversions and no dizziness. I couldn't do anything, no matter how gentle, before. The exercise is helping overall with balance, stamina, flexibility. It feels so great to be able to MOVE and not have consequences!
Please keep me updated.

My Best, Carol
Fehrenbach16
Fehrenbach16
Did you still have to folow a low salt diet and restrict cafeine?
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