
Meniere's Disease Support Group
Meniere's disease is a balance disorder of the inner ear. The symptoms of Meniere's are variable; not all sufferers experience the same symptoms. However, "classic Meniere's" is considered to comprise the following four symptoms: Periodic episodes of rotary vertigo, hearing loss, tinnitus, and a sensation of fullness or pressure in one or both ears.

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I have a question for all of you fellow sufferers. I'm not sure what I have and neither are the ENT's I see. Although they feel that I have BPPV because I have positional vertigo. I get true vertigo when I put my head back or lay on the bad side. Otherwise when I'm in a normal position I feel "off". Not necessarily dizzy in the true sense but I can't drive sometimes because the change in motion bothers me and light changes. Always worse when getting up in the morning and sometimes it's better in the afternoon although last episode it was just that off and miserable feeling all day. I have had plenty of ringing in my ears but get that all the time with or without dizziness. And on several occasions I have experienced the temporary hearing loss but not always with the vertigo that follows. Sometimes I have felt that without incident but the last episode I had I experienced the slight hearing loss in my bad ear with ringing and the next morning woke up to a slight feeling of dizziness and then it progressed over the week. It does not always come on fast/ It starts slowly and peaks and then slowly fades over days or weeks. Is this what meneires patients experience? Or could it be the BPPV? I feel its better to ask the actual sufferes to compare notes as the doctors are clueless!
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My God, thats horrific! I won't say I'm so sorry, because it is frustrating to hear that all the time. But I have deep sympathy because it seems that even though we all have it of varying degrees, we all know vertigo and nausea, ect.
Hey, I have a friend in Germany who wrote to tell me of her friend who was diagnosed with meneires this past summer. In Germany they have a clinic just for meneires patients. This is all they do and they are very successful in treating it. If you live in the U.S. you have probably already discovered you will not be helped. But I guess this girl has not had another episode and is doing great. They have a website www.meniereclinic.com. Check this out it is very state of the art. And I don't know about you, but I would travel to the ends of the earth to find help! I hope all with meneires read this post just so they can have this info. In fact, I might make another post with just this. And thank you for sharing your story.
Tina
Hugs Lyndsay
Can the ringing and occasional hearing loss be associated with plugged ears from allergies? I experience this in both ears and so does my daughter and father who also both have allergies as severe as I do. I wish for once the Dr.s would at least investigate the possibilities of allergies playing a role in inner ear disorders because SO many people suffer with allergies who also suffer with inner ear problems. I read in the Harvard Medical School book of symptoms that a person can experience ringing, temporary hearing loss and even pain as a result of blocked eustachian tubes. Have you heard of this as well?
You could be right. I haven't ruled anything out yet. I'm still trying to gather info and I'm scheduled for am MRI soon. I had one in 2003 when my first bad attack came on and they never diagnosed menieres then. But who knows? Do your attacks come on suddenly? My dad has had what I have for 20 years but he never lost his hearing. Is it possible to have menieres and never lose your hearing? I am curious because every doctor seems to have a different answer. Are your vertigo attacks less frequent? Also I've heard that menieres can cause BPPV. It's very confusing.
bppv is when the crystals in your inner ear become dislodged and not where they are suppose to be. One side is usually worse and sparks the vertigo. There is no medicine to help bppv only exercises such as brandt daroff.
I did have my ENG today. I will know more friday morning when I meet with my ENT Dr. to discuss all the tests. The ENG was a real treat, lol!!!
I hope everything turns out good.
julie