hey..I'm new at this, just thought I'd put this out there to see if anyone can relate. I've suffered with my problem for 7+ yrs. but looking back to childhood I can remember experiencing some of the same things I'm going through now. Umm, basically my muscles are deteriorating, and along with this comes alot of other daily trials. I have limited mobility, strength, and live with severe pain everyday of my life. I feel bad for complaining because I know there are people out there who deal with alot more than I do..I just wanted to see if anyone knows what I'm talking about. It started in mainly one shoulder/arm, and now it's all over. I've been through testing for the last 7 yrs. only to come to one dead end after another. I've been tossed from Dr. to Dr. and they all tell me 'yes there's a problem, but I'm sorry, the direction we were going ended up being the wrong direction'..so basically my whole life has kind of been consumed with dealing with this..then on top of that, I developed MS in january of this year..so eedless to say that makes life a little more difficult..there's a good deal of embarrassment that comes from this because there are some obvious physical deformities, plus having to ask for assistance in things as simple as brushing/washing my hair, cleaning, and so on..so if anyone has any advice etc. I would greatly appreciate..sorry for writing so long..if you have anymore questions just ask..I'm sure there's alot I forgot to mention while rambling..ok, thank you..take care, best wishes to all