Hello everyone, I am a 23 year old woman and I have been recently diagnosed with MCTD. I began experiencing horrible gastrointestinal pain in August 2016 and after tests and a colonoscopy, I was diagnosed with pancolitis. I had to revamp my diet, removing dairy, caffeine, and alcohol. I have been a vegetarian my whole life so I was happy to hear about needing to stay away from meat (which was just about the only thing I was happy about). I was put on Apriso and went into remission from September until the following spring. Then the summer was rocky, needing to follow my diet more strictly. By that August, I was in severe pain again. Things hit the worst point the day after Thanksgiving last month when I was in such pain with internal cramping and whatever else that I was writhing in pain on the ground in tears. I went to my gastrointerologist who didn't have much to say, but my primary ran some tests and my ANA markers were high. After another panel of testing, he diagnosed me with MCTD. This was just yesterday. I am still struggling to understand exactly what this means for me and what this means for my future. I am thankfully not experiencing any of the syptoms I have read about online, except for Raynaud's (which was one of those "ah that makes sense" moments). I am making an appointment with a rheumatologist tomorrow and I hope he will have some more information and answers. I am scared and concerned about what is to come for me. I am also concerned about the risks of pregnancy I have read about online, because while I do not plan on getting pregnant for 5-10 years, if this is degenerative then I may have complications at that point. My reason for joining this board is to talk with others who are more educated on what this is and have been coping with it for a while, as well as to talk with those who are also new to this and worried like me. Thanks everyone!
Today I went to see the Family Dr and the Rheumatologist. The family Dr took 3 tubes of blood to check my blood count, a metabolic profile, TSH, and A1C. My BP was 140/98, so he was concerned and talked about upping my meds. After some errands and a meal, I went to the rheumy who was concerned that my BP was too low. It was 103/70. You see, my meds had finally kicked it! Anyway, he took my hair...
Scoring a 71 with normal being less than 20 units.71 is a moderate to strong positive, 80 is strong.Tricky test to read, will explain later.