MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Hi everyone, how is everyone doing Today? I'm feeling okay today, alot better than yesterday. I just could'nt do anything yesterday. I just sat around with the dogs and cats and watched TV. The kids have been sick so they were not asking me to play with them,so i did'nt feel to guilty about not doing anything yesterday. If it helps anybody I found that keeping a daily journal of my pain level and areas most affected helps me and my rheumatologist decide on the best treatments. Well thats all for now talk to ya later.
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I have not been able to post lately as my life is a mess right now. My husband has prostate cancer and had surgery in November. The Dr had great hopes for a cure with surgery and assured him that he would have bladder control with in 6 months. Well, the tumor was small, not really agressive but was up against the rectum and so he could not get it all. He was to have his catheter out in a week, it...
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Hi there. I'm new here. 33 y/o female. My story is long but here's the short of it: I had an incredibly stressful life event (non-physical) that caused me to have numbness down both arms and legs. I thought it was anxiety and it lasted about 2 weeks, then I was left with a sense of fatigue in my thighs only. It was weird, but since the numbness went away I thought this would, too. It didn't. So...
On a slight uptick here. Foot is a bit better, it's not reacting as badly to exercise. Still having trouble gaining weight even though appetite is back. Feeling a little less foggy than last week, a bit more clearheaded, we will see if it lasts and how long...
--Catalyzt
Last night my skin was burning. Today my head and back hurts, but my energy level is a bit better, and i went out with a friend then cooked a nice dinner when we got back. Havnt done much since then, just laying on the sofa listening to the sound of the fire and feeling a bit sleepy....hugs
My back and hip are killing me still. Did sleep almost 6 hours last night.
Glad to hear some of you are feeling better.
Mary Ann