MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
Hi everyone, how is everyone doing Today? I'm feeling okay today, alot better than yesterday. I just could'nt do anything yesterday. I just sat around with the dogs and cats and watched TV. The kids have been sick so they were not asking me to play with them,so i did'nt feel to guilty about not doing anything yesterday. If it helps anybody I found that keeping a daily journal of my pain level and areas most affected helps me and my rheumatologist decide on the best treatments. Well thats all for now talk to ya later.
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Today I went to see the Family Dr and the Rheumatologist. The family Dr took 3 tubes of blood to check my blood count, a metabolic profile, TSH, and A1C. My BP was 140/98, so he was concerned and talked about upping my meds. After some errands and a meal, I went to the rheumy who was concerned that my BP was too low. It was 103/70. You see, my meds had finally kicked it! Anyway, he took my hair...
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Scoring a 71 with normal being less than 20 units.71 is a moderate to strong positive, 80 is strong.Tricky test to read, will explain later.
On a slight uptick here. Foot is a bit better, it's not reacting as badly to exercise. Still having trouble gaining weight even though appetite is back. Feeling a little less foggy than last week, a bit more clearheaded, we will see if it lasts and how long...
--Catalyzt
Last night my skin was burning. Today my head and back hurts, but my energy level is a bit better, and i went out with a friend then cooked a nice dinner when we got back. Havnt done much since then, just laying on the sofa listening to the sound of the fire and feeling a bit sleepy....hugs
My back and hip are killing me still. Did sleep almost 6 hours last night.
Glad to hear some of you are feeling better.
Mary Ann