MCTD Support Group

Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...

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/ MCTD Support Group

Hello....

deleted_user
deleted_user
I read a post that there needs to be more discussions...I tried to start one, and I only got one response...Thank you Catalyzt.
Anyway...just trying to be a part of the gang.
Have a great day.
Catalyzt
Catalyzt
Well, it's a new topic... there are only a few of us here so far... When I was younger, this condition really made me feel like a freak-- all the school I missed in high school, people thinking it was pyschosomatic before they developed the blood tests, etc. Now that I'm older... well, I still feel like a freak! And I don't care...

But it's nice to know there are a FEW other people out there who are on the same ride, so even if a post only gets a couple of responses, it's all good...
deleted_user
deleted_user
HI......I have numerous health issues w/crossover symptoms........I guess that I am a freak too.....after all the time it has taken to get some kind of diagnosis.......it has left me wondering if this is real or is it a nightmare??? My health issues have caused me to quit work & be on disability......been 2 years off full time employment now & I feel like I am insane......not just going insane.....nobody seems to really care that I am so incapacitated....I try to live a "normal" life but it is so difficult & with no help I feel very alone with this disease.....I am glad to be here & have DS for a place to unload......being part of the gang
Catalyzt
Catalyzt
Welcome, Brandon... yeah, I know... on good days, I think, "Maybe this is all in my head, maybe the blood tests are wrong, I haven't need any medication for days... maybe I'm just crazy." Then, when the symptoms flare up, I realize that of course it IS real, my blood tests have come back positive for MCTD several times... and I am ALSO crazy! Read your profile, interesting about damp days-- I have trouble the day BEFORE weather gets damp, after the rain has started, I'm usually a little better. And yes-- Vioxx and Celebrex and NSAIDs did nothing for me, zero. Good to have you here...
deleted_user
deleted_user
Thanx for the welcome on here.....it is good to know that I am not the only "crazy" with phantom disorders that baffle even the most "I am GOD Rheumies" .......For years they couldn't come to any 1 diagnosis but were content to send me home with "DRUGS" to "TRY" but they all just made me sick & reactions were unbelievable......now that they have come up with a diagnosis there still isn't any one drug or miracle pill or shot that alleviates any of my symptoms.....really am tired of being their guinea pig
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