Macular Degeneration Support Group

Macular degeneration is a medical condition where the light sensing cells in the macula malfunction and over time cease to work. According to the American Academy of Ophthalmology, it is the leading cause of central vision loss (blindness) in the United States today for those over the age of fifty.

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  • CinSun

    new format

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    i can't seem to navigate this new format of ds. is it just me or others
  • autumm

    Stem cell transplant done

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    Moorfields eye hospital London has just carried out the first stem cell transplant for AMD. The cells were grown at University College London and the transplant has been done at Moorfields. All is going well and we will have more answers by the end of the year. They say that if all goes well it such be as routine as a cataract operation. I have AMD,wet in my right and dry in my left. I am a...
  • platbrat

    Plaquenil

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    Great news! My last eye exam showed NO signs of macular degeneration after going off Plaquenil. I had been on Plaquenil for 10+ years.
  • PhilGab8

    Areds2 Supplement

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    I have wet macular degeneration and started getting monthly injections of avastin in both eyes. 18 months ago I began taking Pro Optic areds2 formula tablets and I have not had any bleeding in the past year. This is not an endorsement for this product and I have no way to tell of the connection. Has anyone had success with areds2 supplements?
  • r1ta8

    bioptic telescopic glasses

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    I am considering these glasses. I would like very much to hear from others who have experienced these first hand to find out what they think - positive as well as negative aspects. I live in SE North Carolina and would like especially to hear from others in this area. Thanks so much.
  • Hi,My mum has dry AMD and is considering IOL surgery at the london eye hospital. The cost is 20k + but more worringly I have heard stories it does not always work. Her independant eye doctor has advised it could possibly make her vision worse rather than better. A consultation with the london eye hospital costs 400 on its own so we have got that far yet and Im also worried they will may be...
  • deena64

    New diagnosis

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    Hi Everyone,I'm new to AMD and new to this group. In May, at age 50, I was diagnosed with dry AMD. I have no family history of it, I am not obese, not diabetic, I am in shape, eat well, exercise, non-smoker, etc... In other words, I did everything right and I am stunned at this diagnosis! The only thing the doctor could come up with is that I was exposed to a lot of second hand smoke over the...
  • I went to my Retinol Specialist for a 6 month check up but saw a different Dr. He was just as vague and impersonnal as my regular Dr.! He also gave me a different diagnosis! He said I was just on the line between between dry and wet MD. The other Dr. said "Your dry MD has become wet".Is it just because telling someone they are losing their sight gradually turns them into zombie like creatures...
  • Edger

    Sweets cause problems?

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    I have type two diabetes. Would too much cake, muffins and ice cream make macular degeneration worse? I have early stage dry macular degeneration.Barbara
  • nikkinamee

    Acupuncture treatment

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    Has anyone looked into acupuncture treatments for ARMD? I spoke with an acupuncturist who claims it works. There are no needles near your eyes. If anyone has tried this I would like to know what your experience is.
  • After searching quite a bit online, I couldn't find a good system for my father, so I tried it do-it-myself project. It turned out very well. I'm hoping it can help others. Happy to answer questions.https://docs.google.com/document/d/1tmEphNRisIqy-qe1iLHEO4x2J5bvknT72bRiMgx0ckg/edit?usp=sharingThis is not an advertisement or solicitation. Motivation is only to share know-how.Dan
  • missylissac

    New Member - Avastin

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    Hi all! I am a newbie! My background - Diagnosed at 26 (14 tears ago). There were absolutely no treatments available when I was diagnosed (14 years ago). But, I had no symptoms until 6 months ago so I didn't need treatment. 6 months ago I went to my retinal specialist for testing, but I had no current bleeds so there was nothing that could be done for me. I went for my yearly exam last week with...
  • totylupe

    Suggestions needed

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    Hello everyone,I have never posted on this board, but I need some advice. I have a nevus in my right eye. It sits just over the optic nerve, apparently I have had it since birth, and with time it has grown. About 10 years ago, my ophthalmologist referred me to a retina specialist. They ran many tests, and said that the growth was not cancerous and it was not operable because of its location. ...
  • I was wondering if anyone else suffers from eye pain. My eyes hurt so much I have a headache every day. How do you handle it?
  • Hello all,I am the daughter of a recently diagnosed Mother with Macular Degeneration. My Mother is soon to be 88 and has resisted the call of the internet and all the information it can provide.I have joined this support group so that I can be useful to her. We have Macular degeneration support groups in the UK but my Mother has not worked up the courage to go. In fact it has taken her 1 year to...