Lyme Disease Support Group

Lyme disease is the most common vector-borne disease in the Northern Hemisphere. It is now one of the fastest growing infectious diseases in the U.S. Lyme disease is caused by infection with the Borrelia burgdorferi bacteria, and is primarily transmitted to humans as well as dogs, horses and other domesticated animals by the bite of infected ticks.

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Infectious Diseases
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S.O.S./distress

deleted_user
deleted_user
I'm oficially goin' crazy.There has never been a more complicated,confusing situation in all of my existence.....Got new test results yesterday.The doc says there's no evidence that I've ever been exposed to lyme AT ALL.Yet,I am showing inflammatory reactions according to the blood work.She suggests maybe it's Fibromyalgia.But,FM does not have inflammatory responses.....Is there anyone who can help me sort this out and give me their opinion,PLEASE? I'm just so tired of struggling over a mere diagnosis,much less the treatment(s).
deleted_user
deleted_user
What type of doc are you seeing? Most doc, except LLMD (lyme literate med.doc)know much about lyme. Blood tests are not dependable, so it's really a clinical dx. Many regular doc have this confused for some reason. But, many reliable sources are aware of this. I've taken 2 lyme tests and both were neg., but all my symptoms are that of lyme and a CD-57 test that measures your natural killer cell was extremely low. This means I either have chronic lyme or HIV. I don't have HIV. I did have a rash almost 3 years ago and blew it off as poisen ivy or something. But the time frame, which was about 2mos later, I started my back pain and from there it was all downhill. I was also in the woods everyday walking my dogs. All this lead to the clinical dx of lyme. Unfortunately, the medical community still knows little about this disease. Check out the columbia university lyme center website. I don't have it on hand. Just google it. It's the first of its kind and explains alot of the contraversey . So I would advise to see a LLMD before many other docs, because if you do have it and are misdx, it will be much harder to cure. Since I was misdx for 2.5 yrs, I'm looking at a long battle to cure or just get much more functional. I may have longterm effects. I heard both with people in my situation. Anyway, good luck and check out american lyme association website to find a LLMD if you need to. Take care, Kris
deleted_user
deleted_user
you also may want to contact Igenex and do a test with them. they will send you a free test kit right to your house. the only trouble then is getting your doctor to sign off on it and you will have to pay the 450$ to pay for the test up front. your insurance should reimburse you for that after you send in the receipt to them. they do more extensive testing then your regular doctors will do. good luck!! if you need the number to Igenex it is 1-800-832-3200..
slrow
slrow
There is a lab in Calf. The best in the country if you have Lymes they will find it. Go to Igenex.com. The test kit is free but it cost 500.00 to read but well worth it to get your peice of mind.
Sherry
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