Hi martinfan. How are you doing?

From what I understand, if arthritis or other symptoms are from Lyme disease, they should be eradicated with proper treatment.

What meds are you taking?

Any damage to the cartilage or joints is permanent and cumulative. If I recall correctly Lyme Arthritis behaves similarly to Rheumatoid Arthritis, at least it has in my case. My knees are in bad shape from it, both the knee caps have excessive movement, about 1.5 inches or more up down and left right when the joint is unlocked, they wiggle a bit when the joint is locked. The good news is the sooner the treatment for Lyme is begun the less chance of cumulative damage there is, and the greater the chance for regrowth.

I am on Rosephin. But, the pain in my joints hasn't been touched!! I have had lymes for 2 1/2 years before the treatment started. I am just concerned that it will always be here. It is so painful.

The only thing that has helped the pain and healing specifically in my joints, especially the knees, was Samento. I've gone from not being able to walk because of the knee joints to days where it has been absolutely pain free.

Hi Martin I read your profile. I have a biotoxin disease but it is not Lyme disease. I have liver and brain damage as well as Secondary Adrenal Insufficiency. It took me a lot of research and many doctors to figure out what was wrong with me but I found out I have mold in my body from a medical procedure. During my research I found a couple of books that were extremely helpful in understanding the biotoxin pathway. A Richie Shoemaker, MD has done an incredible job documenting and treating people like us who have biotoxin diseases. His website is www.chronicneurotoxins.com and one thing is clear from reading two of his books is that if you are a certain genotype you will not get better without toxin binding drugs. It's a marker on the HLA-DR. He says that is why some people recover and some don't. His books are Desperation Medicine and Mold Warriors and both are a good read with lots of information on the biotoxin pathway. They read like a mystery novel and so I couldn't wait to turn the next page. I hope no one is offended because I post. I just think you all understand biotoxin illness better than any other group of people.

Mine is similar to Rheumatoid Arthritis and has not gone away. It is def better than it was a few years ago, but I feel pain every day. Some days are really bad and others not as much.
My understanding is that the damage is permanent, but I am not giving up hope or will never stop looking for what will heal me completely!

I have a siff neck from lyme
that i got 17 years ago.I have
had lyme 5 times.This time was
not very good.Had it for about
a year before they found it.
They tell me it,s for life.

Hi Harvey. Have you been tested for the co-infections?

Stiff neck can also be caused by the co-infection Babesiosis. This is what caused my stiff neck.

After sucessfully treating Babesiosis, my neck is better.

Martinfan,
I am lucky and only have arthritis in one leg. I recently went to a neurologist who is sending me for physical therapy.

She believes the pain will go away after 4 weeks of therapy but I will have to exercise for the rest of my life to keep it away and from getting any worse.

I don't know if this helps are not but wanted to let you know what my doctor said.

I was diagnosed with Lyme last summer and took 100 MG of Doxy for three weeks. So far I am feeling excellent except for the arthrtis.

Take care and I will pray you get better soon.

I have had a stiff neck for 17
years now.Do not know if it
will ever go away.
Harvey

Hi. I'm new to the group so I hope no one minds that I hop in here. :) I have Lyme (Late-stage/chronic Lyme) and have had for 25 yrs. It went undiagnosed for approx. 18 of those years.

I have terrible arthritis (all of my docs, including Rheumatologist) call it "Lyme Arthritis". I've taken everything known to science to eradicate it, but with no luck. I'm resigned to the fact that I have to live with this disease. HOWEVER, Lyme does not define who I AM. I just happen to have to deal with it.

I'm scheduled for a THR (total hip replacement) on Sept. 11 because of the Lyme. If anyone else has had a joint replacement of any kind, I'd love to hear from you!

By the way, someone mentioned taking Relafen. That's an anti-inflammatory and I used it for about a year until it lost its efficacy for me. Now I'm on Meloxicam and it's helping a great deal more than Relafen did. JMHO.

Thanks in advance for any advice.

I too have joint damage from where they caught it to late. No matter what I have tried it doesn't work. I have did aqua therapy, many different pain meds. I take 60 mg of oxycotitn 3 times a day and that keeps it bearable. It is not just my knees either it is all major joints like my shoulders, hips, ankles, wrista. They too found it way to late for me I think to ever get rid of it. I have had it since childhood and have just been treated in the last 5 years and I am 38. Best of luck to you.
lol, God Bless,
slrow

Hi! Actually, doctors used to call the disease Lyme Arthritis, because they felt that joint pain was the main symptom of the illness. Since then, they changed the name to Lyme Disease, finally realizing that there are numerous symptoms. With proper treatment the joint pain should diminish over time. Hope this helps!

I was on rocephin too, it did nothing for the joint pain but helped alot with the god awful headaches, and ringing in the ears and eye floaters. Doxy really helped with the joint pain for a while, I think my body got used to it and it stopped working was on it for @ 4 months last year and 2 months this year, thinking of starting back up. It is sad when you have to treat yourself-the two ID docs I have seen have dropped me. They act like you are begging for pain killers when all we want is the right antibiotic for the right amount of time so we get better!

hi i also am going thru what your experiencing somedays I have to walk with a cane other days every joint hurts so bad sometimes even the blankets resting on my toes is painful, I get gimped out looking somedays and others I look normal, sometimes I wonder what people think one day they see my with a cane and the next trying to jog down my road . such a strange disease my llmd said somethings would improve and other things might stay the same but on my meds I shouldn't get worse but you have to remember that this is a farely new disease and know one reaaly has answers