what is your major symptom? is it pain? it is for me.. my hips, back, elbows, ankle and sometimes finger joints and wrists kill me and also neck area... Ive been on every pain med.. morphine to now Im on a fentynal patch with anti anxiety meds to easy my panic! second would have to be fatigue. Im so tired. I do work during the week (I have no clue what I look like when I get there . haaa sometimes its not too good) but Im there!!!! but when I get home its straight to bed. and ifs its a friday, its bed until monday morning or may tuesday morning. sigh..... how do you all get through this? I just get up and go.. plain and simple. sometimes i try to pick out what to wear the night before so Im not stuck in the morning trying to put something together, but usually Im too tired to do that! ugh!! and house work! forget it.. theres many dust bunnies floating in corners, the floor needs to be sweep, dishes, well you all know. I just dont have the energy for it... everyone does pitch in ,thank god, but you know its not quite the way you would do it!! but were grateful for any help and I wont complain. the biggest silliness of this is that we are soooo tired, and yet here it is 3 am and we cant sleep!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1 its a mind game disease.... one day you can vaccum the rug.. so everyone this yeah,mom can vaccum now... great.... but 4 days later the rug hasnt been vaccum cuz moms been in bed... no one can think hmmmm.... the rug needs vaccuming maybe I should do it. HA! think again. I have to corner someone down, tell them to do it... the mandatory 3 to 4 times.. begrudginly....because looking at us we look ok.. exept maybe I havent had the energy to take a shower in 3 days, but hey,Im not mobile enough to go anywhere this weekend anyway! so who cares. I need my energy to lay in bed!! Plotting my revenge agains LYME Hope your all feeling the best you can today.. peace Allorrra
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