I am so tired of being in limbo, I was dxd with ms 3 years ago, had a spinal tap, it had olicglconal bands, the brain mri was normal, spine showed very small non specific lesion, which later dispperared, i was fine for 3 years then in aug i started having trouble concentrating, painful hearing, muffled hearing, memory problems, anxiety, depression out of no where, neck pain, headaches, nausea fatigue, at one point they told me its not ms its antiphosphlipid syndrome,which lyme can cause, i did see alyme specialist 3 years ago which he tested me for and like 6 different bands came back positive, but neuro said it doesnt matter becuse you have to have a certain amount. I was thinking of going back to him he started me on doxy 3 years ago but at that time i was symptom free so i stopped. can lyme go into remiisiosn like that. i mean i did still have the headaches neckpain nausea diziness and so on but nothein major. O ne of the top ms specialist said to me if i didnt have the oliglcloal bands in csf he would say i didnt have it. now they also tested me for lyme antbodies this last spinal tap in sept and notheing showed. is it poossible to stil have lyme and not sho w in csf? so confused. and frustrated.
Posts You May Be Interested In
I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...