Hi everyone. I've been dealing with this for over a year and a half now. In Feb 2008 I was "injured" at work. I was diagnosed with some sort of strain in my shoulder. The workman's comp Nurse Practitioner gave me some Ibuprofen and some kind of muscle relaxer. He didn't notice the huge lump that I had on my shoulder. Anyway, my shoulder didn't get better and within a month my right arm began to go numb and my fingers would tingle and not work. My right hand would also start to "twitch" sort of like an MS twitch. Finally it would turn very pretty orange, red, yellow colors. This continued on until May of 08 when my head began twitching and after that I couldn't walk or speak normally. I would shuffle instead of walk. My speech was slurred and stuttering. I stayed like this until around July of 08 when the confusion and forgetfulness accompanied my other symptoms. I had seen two neurologists, a neurosurgeon, and three general doctors. They all told me there was nothing wrong; or that I had some conversion disorder and to get hypnotherapy and other BS. I finally saw a neurologist at UCSF medical in Oct 08 who ran an extensive battery of tests. My screening test came back positive for Lyme but the western blot was negative. The only other test that was abnormal was my ANA something which was explained to me that indicated some swelling somewhere. I saw him again in Jan 09 and he ran the same battery of test and I got the exact same results. Then in Feb 09, my doctor did an EKG that showed I had had a heart attack some time. Of course this was dismissed also. In Mar 09 I went to the ER cause my face started to droop. There I received a diagnosis of Bells Palsey and they gave me some steroids and anti-viral. My speech improved within a week and my other neurological issues improved as well. Oh yeah, all this time I have had the ache in my joints and nasty headaches. But, I thought I was getting better. Than, the county health office called me in around April and asked me how my treatment of Lyme Disease was going. I asked what they were talking about and they said cause my screening test came back positive twice, they were considering me a Lyme case. I immediately called my Dr who informed me they were incorrect and I DO NOT HAVE LYME. I accepted that until 3 weeks ago the health department again called me to ask how my treatment was going and I explained to them what my Dr had told me a couple months back. They said my western blot came back positive and I was for sure a Lyme case and I need to be treated probably with IV antibiotics cause of my neuro issues. I called my Dr and he said they didn't know what they were talking about and that I don't have Lyme. I had received a copy of the results cause of the workman's comp issue and read the results. He said "oh, that does sound like a positive test." I called the UCSF Dr and he confirmed the positive test. Tomorrow I have to go have another LP so they can test the spinal fluid for whatever they test for. The funny thing is, I went to a QME last friday for this workmans comp crap, and he diagnosed me immediately with Lyme just by looking at the picture of the lump on my shoulder. I had shown this picture to EVERY Dr I had seen and they ALL ignored it. The one Dr I would expect to be against me, actually supported me. To everyone who thinks they have Lyme or any other unexplained symptoms, DON'T LET THE DR'S TELL YOU YOUR CRAZY. Stay after them. Remember they only give you their "opinions" and that they only "practice" medicine. Good Luck!
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