I was dx with chronic lyme about 9 months ago. Misdx with fibromyalgia for 3 years. I have 90% of all the symptoms of lyme and had a rash and my life is no longer a life anymore. Something, I'm sure many can relate to. Anyway, I went to a new neurologist trying to find a doc to do IV antis. since my LLMD is 3 hours away. He did MRI (had some white spots) and and EER which showed some neuropathy in my legs, then did a spinal and I'm still waiting for tests results. He believes that the lyme is gone after 8 mos of oral antis and that it's my immune system that is completely messed up and that's why I still have all my symptoms. He wants to do IVIG to boost my immune system. But, from what I've read I probably still have active lyme, which of course no one can find on any of those unreliable tests. My LLMD thinks I need IV antis to kill off all left over spirocetes or else the lyme will just come back. It's so confusing having one doc say one thing and another say something else. I know no one is a doc, but if anyone has any info or experience or just thoughts on what I should do, I'd really appreciate it. I'm so sick of being sick and just want it over. I'm sitting here this morning a 4am in pain and worrying, when I should be sleeping, but can't because of the pain. Which I'm sure will set me up for a great day. . Thanks for listening. Love ya all, kris
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