I am having really bad pain in my legs, and now again on the bottom of my feet... deep aching. Not the ice pic or glass feeling.. just deep pain. It started before the rafimpin, so I can't blame it on that. It got worse a few months back and we added a 2nd dose of lyrica. Now, when I stopped the lyrica I remember how bad my legs were getting. I'm not off lyrica b.c I enjoy pain, mind you! I am off lyrica to see what the lyme has been up to since I've been taking it, and apparently it's (and it's co's) have been up to no good! I can't do IV b/c of allergies. I am beginning to imagine my life in a wheelchair and I don't like having thoughts like that. If I go back on the lyrica I will "feel" better but I won't "get" better. It seems pain is the only barometer I have. I liked a friend's idea for a scheto-meter so that we could keep an eye on thing on the INSIDE! That would be good, but for now, until someone invents one, I've got my legs and feet telling me that I need help. Has anyone else had this? Can it be cause by neurological lyme? Is this just one more neurological symptom? I am herxing some b/c of the new med, but this started before, like I said. I'm going to call my LLMD tomorrow, but I was wondering what other people have experienced.
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